“There seems to be a big commitment towards engaging patients but that work is still happening in a fragmented way, in different parts of the world”, says Nicola Bedlington, Secretary General at European Patients’ Forum.

The challenge is to ensure that patient engagement happens in a strategic, structured and coherent way. There are many separate projects around the world tackling this. One of them is EPF’s own project the “European Patients’ Academy on Therapeutic Innovation (EUPATI)“ , which provides the education, the tools, the materials to educate patient representatives and the lay public about all processes involved in medicines development.

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