New Blog - Patient Focused Medicines Development

Recent Stories

Unlocking the potential of cohort studies

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Research studies following groups of individuals can answer vital medical questions, such as why people suffer from a health problem; or what determines recovery. They are, however, expensive and...
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A PE trailblazer committed to improving patients’ lives

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In a fragmented and fast-evolving patient engagement landscape, the need to align stakeholders, harmonise approaches and perspectives and share best practices is critical as we strive to deliver better...
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Developing the patient engagement system

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Nicholas Brooke, CEO of PFMD, tells Gary Finnegan why solving the patient compensation conundrum will unlock the power of patient engagement Patients, industry and regulators are making patient engagement...
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FDA calls on industry to speed up trials process

The FDA appears to be taking its regulatory role to new levels as it seeks to shape a better medicines development ecosystem. The recent statement by FDA Commissioner Dr...
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Framework Development

From the beginning, PFMD worked to develop a systematic approach that ensures co-creation based on existing knowledge and balanced collaboration with all relevant stakeholders. This allows us to move...
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Reduce the burden of legal agreements with WECAN and MPE

Collaboration between pharmaceutical companies and patient advocates typically requires both parties to sign contracts covering various topics. These written agreements can often be too long and complex, and can...
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Putting a figure on patient engagement

As part of the Fair Market Value global effort, we launched a survey in mid-December 2018. This was open to all types of stakeholders, and the goal was to...
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Synapse – your tool for patient engagement

Synapse has evolved in the last year, from mapping to connecting the patient engagement ecosystem. The platform has grown 18% in initiatives and 30% in organisations since 2017, further...
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The wide-ranging impact of patient access

Patient engagement means opening the door to patients for meaningful dialogue and contributions. A recent op ed in In Vivo explored several ways in which patient access can truly...
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Europe highlights patient role in innovative medicines

The EU Innovative Medicines Initiative (IMI) is encouraging patients and patient groups to play their part in developing therapies of the future. With a budget of €3.3 billion (2014-2020),...
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