Book of Good Practices Submission Guide – new - Patient Focused Medicines Development

Help inspire the patient engagement community

If you have patient engagement initiatives you are particularly proud of, we want to hear from you.

You and your organisation can be featured in the next “Book of Good Practices” – a selection of patient engagement initiatives that can be considered good examples.

How to apply

Entries can be made by completing the Book of Good Practice submission form and sending it to before the 4th of May 2020.

Check out the previous editions

About the Book of Good Practices

The Book of Good Practices is a collective good practice sharing initiative that showcases patient engagement projects that are exemplary in one or more Patient Engagement Quality Criteria, showing meaningful ways of involving patients and other stakeholders in the medicines research and development continuum.

How are cases elected?

In addition to submissions from the public, PFMD also screens through all cases shared within Synapse  – the digital space for the patient engagement community -, and makes a pre-selection based on:

1. the completeness of information on the initiative
2. the involvement of multiple stakeholders, one of which needed to be a patient or patient organisation.

This shortlist of cases will then be anonymised and an evaluation is made by an external review group consisting of contributors representing diverse stakeholder groups (namely patient advocates, public sector and pharmaceutical industry representatives, as well as academic and independent experts), who are/ have been actively involved in the PFMD Co-creation Working Groups or otherwise have an excellent knowledge or experience in using the Patient Engagement Quality Guidance. A detailed methodology has been published in the November 2019 edition of the “DIA Global Forum Insights Action” publication.

Timeline and Process

January to May

Submission of initiatives by project
owners / Selection of initiatives from Synapse

Mid April to May

Shortlisting and anonymisation


Clarifications from initiative owners

(Project owners should be ready to respond to clarifications from reviewers in the month of May)

Mid May to June

Review/Evaluation by reviewer panel and final selection

July to August

Consolidation, final edits and formatting

Sep. to Nov.

Finalisation for release of the third edition of the Book of Good Practices

Additional Information

Questions or inquiries concerning the Book of Good Practices can be directed to PFMD at In addition, you can visit our website to view and download the previous editions.