PFMD’s HOW TO modules for patient engagement
As the next step to ensure systematic patient engagement, PFMD is building on existing working groups to deliver “How-to Modules” for patient engagement activities, skills and development phases.
The practical “how-to modules” are built as part of the Patient Engagement Quality Guidance (PEQG), which was co-created between 2017-2018.
For this continuation work that provides more in-depth and practical guides for specific patient engagement activities, the co-creation working groups were created in January 2019.
The work was kick-started with 44 contributors across 31 organisations (including patient organisations, pharma, hospital, CRO) and eight individual patient experts. Four co-creation working groups will focus on patient engagement activities that are specific to the medicines development phases and two more working groups will take on activities that go across the traditional phases: plain language summaries (including other communication aspects) and training and education.
Working Group 1
Early development & Preclinical
Working Group 2
Clinical trial phases I-III
Working Group 3
Working Group 4
Working Group 5
Plain language summaries
Working Group 6
Training and education
First draft how-to modules delivered in 2020
PFMD Contributors’ Network
44 Participants, representing
32 organisations, in:
*6 Working Groups
11 Industry representatives
9 Patient/ patient organisation representatives
6 Consultancy representatives
6 Patient experts/ advocates
4 Independent experts with various related expertise
3 Academic researchers
2 National and supranational organisations
2 CRO/ Service providers to pharma industry- representatives
1 Research Hospital representative
Are you interested in contributing to this work?
The aim is to deliver the first “how-to” practical modules before the end of 2019.
Expertise is always welcome, so please contact PFMD if you want to collaborate.