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Patient remuneration: have your say

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Now is your chance to help to share harmonised global principles on remunerating patients for interactions with industry  As patients and industry move towards new standards on how the patient community collaborates with healthcare...
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Wanted: a global approach to patient remuneration

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Patients should be compensated for their contributions to public engagement activities. A new project aims to co-create global tools to enable ethical, transparent, fair interactions between the patient community and pharmaceutical...
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Children are patients too

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Today (Wednesday 15 February) marks International Childhood Cancer Day. PFMD member Sarah Krüg, Executive Director of CANCER101 and former lead of pediatric disease management pathways at Memorial Sloan Kettering Cancer Center reflects on...

Getting on the patient engagement map just got easier!

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Just over 10 months ago we launched the PFMD Global Mapping and Networking tool – a dynamic user-populated platform that categorizes and ‘maps’ patient existing initiatives, frameworks and organisations. The goal is to capture...

First public outing for mapping and networking tool

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It’s always really exciting to showcase something new and unique for the first time. So we are really thrilled to be taking the PFMD Global Landscape Mapping and Networking Tool on the road at the first ever Patients as Partners event to...

There is a critical mass developing in patient engagement

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Kim McCleary Managing Director of FasterCures, a centre of the Milken Institute shares her views on the growing commitment to ensuring better patient engagement in a video filmed at the DIA 2016...

We are moving into a new period of patient emancipation

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; PFMD member Roslyn Schneider, Global Patients’ Affairs Lead at Pfizer discusses emerging trends in the development of meaningful patient engagement in a video filmed at the DIA 2016 conference: “The most important trends I see...

Patients are not just stakeholders – they are experts

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Theresa Mullin, Director of Strategic Programmes for the U.S. Food and Drug Administration (FDA) Centre for Drugs shares her views about the importance of recognising patients and caregivers as experts in a video filmed at the DIA 2016...

Join the upgraded #PE mapping and networking tool

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Better patient engagement in medicine development begins with understanding and categorizing the existing landscape. PFMD has developed and launched an online mapping and networking platform that captures, maps and categorizes patient...

Next steps in developing a patient engagement Framework

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The complexity of medicines development and urgency to deliver effective patient engagement necessitates a phased working approach to the development of a meta-­framework for patient engagement- PFMD’ end goal. PFMD is taking a rational...