Recent Stories

Wanted: a global approach to patient remuneration

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Patients should be compensated for their contributions to public engagement activities. A new project aims to co-create global tools to enable ethical, transparent, fair interactions between the patient community and pharmaceutical...
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Fast-moving medtech accelerating pivot towards patient engagement

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Pharma got a head start on working with patients, but some medical technology companies could catch up quickly if they have the right tools, templates and examples of success  The medical technology sector is large, diverse and populated...
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Virtual events: tips for patient organisations

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As more patient advocates embrace online meetings, what’s the secret to attracting, engaging and keeping your audience? A series of webinars takes you through the 33 questions you need to ask to create impactful events.    The...

The challenges of engaging patients with rare diseases 

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Patient engagement requires a critical mass of patients with the time, expertise and language skills to work with medicines developers. For rare diseases, these patients are hard to find, but EU initiatives offer...

Coping with COVID: Pandemic putting pressure on vulnerable patients 

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Vulnerable patients are at risk of serious illness if they are infected by the SARS-CoV-2 virus. By disrupting research, clinic visits and patient engagement meeting, the pandemic will also have a long-term impact, writes Gary...

“A pioneering opportunity”: piloting the first How-To Guide

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Danielle Barron speaks to Schiffon Wong, Executive Director, Global Evidence & Value Development at EMD Serono, the biopharmaceutical business of Merck KGaA, Darmstadt, Germany, about how piloting the new “How-To Guide for Patient...

How patients can make a real impact with virtual events

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The pandemic prompted patient organisations to go digital, but many lacked the know-how to host high-impact online meetings. Now, faced with ‘Zoom fatigue’ and shrinking resources, a free webinar series is offering patient...

‘COVID-19 survivors are coming out as kidney patients’ 

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The pandemic prompted the National Kidney Foundation to radically change how it works, compromising fundraising drives – just as demand for its services increased Like all patient organizations, the NKF was hit with major disruptions...

Pandemic causing delayed diagnosis of rare diseases 

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In normal times, people living with rare diseases face particular challenges in securing a diagnosis and accessing services. The COVID-19 outbreak has made matters much worse, according to a comprehensive survey of...

Bringing the trial to the patient

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Gilead’s endeavours in patient engagement may still be in their infancy, but Head of Technology and Innovation Matt Bryant tells Danielle Barron that the organization is striving to use innovation to transform the patient experience of...

Supporting arthritis patients through the pandemic 

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Due to COVID-19, patients have faced cancelled clinic visits and disruption to clinical trials. The Arthritis Foundation is working to support them through the crisis, despite significant challenges to its fundraising...