Practical tips for patient engagement Catalogue - Patient Focused Medicines Development

Practical tips for patient engagement

Share your practical experience and help advance
the patient engagement agenda

I want to contribute

The objective

Turning the community’s practical tips about what to do and not to do when developing and delivering patient engagement into an actionable, easy to use handbook.

This is an initiative powered by PFMD, requested by the patient engagement community, and based on the Patient Engagement Quality Guidance. It’s part of a systematic effort to make patient engagement a reality across the life cycle of medicines.

Curious to find out more? Click here.

I want to contribute

Still wondering why you
should contribute?

Simple. Your learnings can concretely and actively support the patient engagement ecosystem.

Your learnings, your successes can serve as guidance and inspiration for other patient engagement ambassadors out there actively working on involving patients in the medicines development process.

The feedback is following 7 quality criteria for patient engagement developed through a strong methodological processes.

Examples to illustrate each PE Quality Criteria

About this initiative

As part of a robust methodology PFMD organised 6 workshops with 76 international participants representing patients, patient organisations, industry (including CRO and biotech), independent experts (with backgrounds from academia, research and also industry), HTA and regulatory.

During this workshops an action plan was prioritised. The objective?
Making patient engagement happen across the medicines development life cycle, via a comprehensive framework as set of tools.

The concrete outputs until now are The Patient Engagement Quality Guidance, The Book of Good Practice and and the Reasonable Legal Agreements initiative. The practical tips handbook was another prioritised action.

Questions or comments?

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