Blog - Page 6 of 9 - Patient Focused Medicines Development

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Getting on the patient engagement map to raise awareness of rare diseases

Today (Tuesday 28 February) marks Rare Disease Day. Mathieu Boudes and Virginie Hivert from PFMD member organisation EURORDIS-Rare Diseases Europe highlight two flagship activities to make sure the voice of rare disease patients is heard. Rare Disease Day primarily aims to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives....

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