Pandemic sees clinical trials halted but some go virtual, benefiting patients, writes Danielle Barron With everything else upended by the coronavirus pandemic, it’s no surprise that clinical trials have also…
The Patient Engagement Management Suite (PEM Suite)
The PFMD network is making sure to aggregate existing knowledge and tools, identifying good practices and coherently combining them before designing accessible and useful avenues for the various audiences that will use them.
The result is the Patient Engagement Management Suite (PEM Suite). A hub of co-created tools, resources and practices to help stakeholders adopt patient engagement in a systematic, efficient and meaningful way.
Explore the tool to help you make patient engagement happen
The current patient engagement landscape is fragmented and there is no standard general agreement on a standardised way to do patient engagement projects or to measure their impact. Synapse has been applied to patient engagement in the “Patient Focused Medicines Development” (PFMD) initiative that aims to transform the way in which we understand, engage, and partner with patients globally in the design and development of research and medicines by focusing on unmet patient needs.
A global framework for patient engagement
The patient engagement landscape is fragmented and currently here is no general agreement on a standardised way to do patient engagement projects or to measure their impact. That’s why PFMD aims to establish, at global level, a systematic and consistent approach to patient involvement – a worldwide accepted standard for how and when the patient engagement should take place.
A community effort for cultural change
The individual Pledge to Patients unites the whole patient engagement community under a common objective – a personal commitment to work with patients for patients. No strings attached. Pledge to Patients is a personal promise to make the small changes that add up to a real cultural shift. It’s been designed to be simple, meaningful and shareable to inspire anyone committed to patient engagement.