Clinical Trial Information Network Project
Switching from clinical trial information sharing to empowering all potential beneficiaries to better perform and ultimately deliver better health outcomes.
Why is this project important
Because the issue at the data source and the distribution capacity
Searching for clinical trials is a well-known challenge, with many organizations and initiatives taking aim to create solutions in a complex landscape of inputs, usage and needs around clinical trial information.
Ultimately, the burden of the inaccessibility and inoperability of clinical trial information falls to patients, who seek relevant, up-to-date, understandable information, at the time and place when they need it most.
There have been massive efforts by many to develop solutions, such as search tools and matching services using manual work and artificial intelligence, which has led to labor and resource-intensive efforts, siloed databases, duplications, competition and abandoned endeavours.
Despite these efforts, the search for clinical trial information remains cumbersome and inefficient. This is largely due to the issue at the core that has previously been impossible to address single-handedly: the source data on clinical trials and access to it.
How will the project advance?
Through a collective approach bringing beneficiaries and data feeders together
This project aims to address the core issues of the clinical trial data source and distribution network. Leveraging the PFMD global multi-stakeholder platform brings together both the data originator via industry partners and the end-user, via the patient community, in addition to all other stakeholders with a vested interest in a solution and scaling best practices, including clinical trial finders, matching services, CROs, academia/researchers, and more.
With a collaborative approach to address data source and distribution
network issues and challenges, we will collectively develop a standardized and sustainable solution to meet all stakeholder and beneficiary needs, with patients at the core.
What will the project achieve:
A co-designed data structure and distribution network
By creating a shared solution to the source data and distribution system of clinical trials, this project will stimulate a shift from simply housing data and information to optimizing its usage. This will in turn empower existing tools and services, and ultimately empower patients in their search for clinical trials.