The patient's corner

Hearing the voices of children in medicines R&D

by Gary Finnegan · August 23, 2021

The views of patients are too often ignored by researchers. Now some clinicians and companies are seeing the value of engaging with younger people  Young patients are up against it. Depending on their illness, they may feel very unwell,...

The impact of patient engagement

The use of patient experience data is reaching a ‘tipping point’, say experts

by Gary Finnegan · July 19, 2021

Regulators are getting serious about incorporating patient experiences and preferences into their decision-making. As definitions and expectations become clearer, momentum is building behind harmonized approaches to collecting and applying...

Patient engagement in practice

PEOF 2021: Patient Engagement to design, generate, analyze and decide on Patient Experience Data

by Danielle Barron · June 18, 2021

Increasingly, industry, patient organizations, academics, regulators and payers are interested in the generation and collection of data from patients’ experiences across all aspects of their lives (commonly referred to as Patient...

Patient engagement in practice

Co-creation in patient engagement – “it’s time to roll up our sleeves”

by Danielle Barron · June 18, 2021

We live in unprecedented times with a global pandemic revealing gaps and inequities across health systems. Despite this, the patient engagement community continues to advance and innovate.    As the Covid-19 crisis dissipates, the...

Patient engagement in practice

From PE Metrics Framework to Actionable Tool – What’s After PARADIGM? 

by Danielle Barron · June 18, 2021

The absence of standardised monitoring and evaluation tools has been keenly felt by the patient engagement community. In response to this gap, the PARADIGM Patient Engagement Metrics Framework was developed, with the multi-stakeholder...

Uncategorized

PEOF 2021 How to Connect Patients to Digital Health

by Danielle Barron · June 11, 2021

Google the phrase “digital health” and you’ll get roughly 50 million results. But what does it actually mean for patients in practice?    An umbrella area allowing exponential scaling in terms of data, networks, information,...

Patient engagement in practice

Putting cardiovascular patients at the heart of the technology revolution

by Gary Finnegan · June 3, 2021

The Global Heart Hub is empowering patients to play a central role in improving their health care. Its founder, Neil Johnson, sees opportunities for medtech and digital health companies to engage with people affected by cardiovascular...

Patient engagement in practice

The road to patient-centred medtech

by Gary Finnegan · May 28, 2021

As medical technology companies become more patient-centred, industry leaders seek to enter the patient engagement fast lane. There is still some distance to travel. The medical technology sector is highly diverse, populated by thousands...

Patient engagement in practice

Parkinson’s disease: what medtech companies can learn from patients

by Gary Finnegan · May 17, 2021

Involving patients can help deliver innovations that address unmet needs, but it’s still early days for the medtech industry’s patient engagement...

Patient engagement in practice

Virtual events: tips for patient organisations

by Gary Finnegan · March 4, 2021

As more patient advocates embrace online meetings, what’s the secret to attracting, engaging and keeping your audience? A series of webinars takes you through the 33 questions you need to ask to create impactful events.    The...

The patient's corner

The challenges of engaging patients with rare diseases 

by Gary Finnegan · February 26, 2021

Patient engagement requires a critical mass of patients with the time, expertise and language skills to work with medicines developers. For rare diseases, these patients are hard to find, but EU initiatives offer...

The patient's corner

Coping with COVID: Pandemic putting pressure on vulnerable patients 

by Gary Finnegan · February 3, 2021

Vulnerable patients are at risk of serious illness if they are infected by the SARS-CoV-2 virus. By disrupting research, clinic visits and patient engagement meeting, the pandemic will also have a long-term impact, writes Gary...