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The impact of patient engagement

Patient health data: translating stories into science

by Gary Finnegan · April 25, 2022
How can real-world data be captured and shared in ways that marry the needs of patients and researchers?   Patients’ lived experience is increasingly viewed as a valuable datapoint in understanding and addressing unmet health needs....
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Patient engagement in practice

Protecting everyone’s interests: the RAPP project

by Danielle Barron · May 13, 2020
The result of a truly collaborative project, a series of reasonable legal agreement templates, offers protection for both patients and pharmaceutical companies, explains Federica Castiglione of Novartis Achieving meaningful patient...
Patient engagement in practice

Involving patients in drug development – from the start

by Gary Finnegan · May 12, 2020
Patient engagement in preclinical research is a new phenomenon. Dr David Feldman, National Kidney Foundation, says a forthcoming PFMD How-To Guide will help connect researchers and patients in the earliest stages of medicines...
Patient engagement in practice

Training can help to build capacity for patient engagement

by Gary Finnegan · May 5, 2020
Prof Benedikt Van Nieuwenhove, Managing Director of ECCRT, discusses the forthcoming PFMD ‘How-To Module for Capacity Building’ and how the COVID-19 pandemic is shifting attitudes to online...
Patient engagement in practice

How-To Modules for Patient Engagement 2020

by Adelina · April 24, 2020
Author: Chi Pakarinen, Project Manager at The Synergist The co-creation Working Groups have been busy devising the various “How-To” guides, each focused on different activities and stages of the medicines development lifecycle. Check...
Patient engagement in practice

Ensuring the patient’s voice is heard

by Danielle Barron · April 23, 2020
Esther Krofah, MPP, is the executive director of FasterCures, a center of the world-renowned Milken Institute. Having recently joined the board, she brings her extensive experience in the government, nonprofit, and for-profit sectors to...
Patient engagement in practice

“We need to take patient involvement to new levels”

by Danielle Barron · April 21, 2020
Dr Sanja Njegic is the Global Head of Patient Partnership at F. Hoffmann La-Roche Ltd (Roche). She is responsible for facilitating early and systematic engagement with patient communities across the product lifecycle through...
Patient engagement in practice

‘We need to build infrastructure to support patient-centricity’ 

by Gary Finnegan · April 15, 2020
Dr Anthony Yanni, SVP and Global Head, Patient Centricity at Astellas, brings clinical and industry experience to the PFMD Board. His recipe for advancing patient engagement centres on establishing systems to maximise how patient insights...
Patient engagement in practice

Nobody has ever regretted patient engagement

by Danielle Barron · March 30, 2020
David Haerry has been an active patient advocate since 1997. A prominent member of EUPATI, David was also involved in several European and global research networks and research collaborations. He co-chaired the Patient and Consumer Working...
Patient engagement in practice

Promoting the interests of patients in research

by Gary Finnegan · March 11, 2020
The Health Research Authority plays an important role in driving patient engagement in the UK. We asked Jim Elliott, Public Involvement Lead at the Health Research Authority & a newly-appointed PFMD Board Member, how the HRA sees the...