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Patient remuneration: have your say

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Now is your chance to help to share harmonised global principles on remunerating patients for interactions with industry  As patients and industry move towards new standards on how the patient community collaborates with healthcare...
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Wanted: a global approach to patient remuneration

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Patients should be compensated for their contributions to public engagement activities. A new project aims to co-create global tools to enable ethical, transparent, fair interactions between the patient community and pharmaceutical...
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Ensuring the patient’s voice is heard

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Esther Krofah, MPP, is the executive director of FasterCures, a center of the world-renowned Milken Institute. Having recently joined the board, she brings her extensive experience in the government, nonprofit, and for-profit sectors to...

“We need to take patient involvement to new levels”

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Dr Sanja Njegic is the Global Head of Patient Partnership at F. Hoffmann La-Roche Ltd (Roche). She is responsible for facilitating early and systematic engagement with patient communities across the product lifecycle through...

‘We need to build infrastructure to support patient-centricity’ 

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Dr Anthony Yanni, SVP and Global Head, Patient Centricity at Astellas, brings clinical and industry experience to the PFMD Board. His recipe for advancing patient engagement centres on establishing systems to maximise how patient insights...

Nobody has ever regretted patient engagement

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David Haerry has been an active patient advocate since 1997. A prominent member of EUPATI, David was also involved in several European and global research networks and research collaborations. He co-chaired the Patient and Consumer Working...

Promoting the interests of patients in research

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The Health Research Authority plays an important role in driving patient engagement in the UK. We asked Jim Elliott, Public Involvement Lead at the Health Research Authority & a newly-appointed PFMD Board Member, how the HRA sees the...

Acknowledging the value of patient input

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When it comes to ascribing value to patient involvement in the development of innovative medicines and med-tech, different stakeholders may have different perspectives. That was the finding of an interesting new report commissioned by...

5 minutes with… the American Migraine Foundation

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As part of our series to help the patient engagement community get to know one another, we spoke to Nim Lalvani, Executive Director of the American Migraine Foundation, about advocacy and involving patients in scientific advisory...

These projects are laying the basis of a healthcare environment

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With 34 years of professional experience, 18 of which are in the medicines industry, Daniel De Schryver has also been involved in aspects of patient engagement for more than 14 years. As Patient Engagement & Advocacy Lead, EMEA at The...

The first step is often the most significant

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Dr Paula Wray, senior public involvement manager at NIHR INVOLVE in the UK has spent nine years in public involvement in applied health research. She attends around 25 patient engagement meetings every year and thus is more than up to...