Patient Engagement: Investment, Sustainability & Impact (ISI)

Advancing the Future of Sustainable Healthcare through Patient Engagement

In today’s evolving healthcare landscape, Patient Engagement (PE) intelligence plays a crucial role. Key challenges can be addressed by transforming data about PE into actionable insights. The PFMD Patient Engagement: Intelligence project enables data-driven decision-making and demonstrates the value of patient engagement for all stakeholders. Experts and contributors are fostering collaboration and building a strong foundation for integrating PE intelligence across the healthcare ecosystem.

Within this initiative, the Patient Engagement: Investment, Sustainability, and Impact (ISI) project leverages PE data to inform investment strategies, support sustainability commitments, and guide impact assessments. This initiative highlights the value of patient engagement across healthcare and society through collaboration among the patient community, industry leaders, and investors.

Why this project?

It’s very simple. It’s because patient engagement:

Amplifies the achievements of sustainability commitments, showcasing that companies who engage with patients can outperform

Allows sustainability commitments and metrics to move beyond risk mitigation

Informs priority setting, business decisions, and value proposition

Strengthens the patient community’s leadership role in healthcare decision-making

Derisks investment decision-making through PE insights that inform impact, profitability, and timeline planning

Drives better health outcomes for patients with patients

Collaborative Efforts Shaping the Future

Our community of experts and stakeholders is actively establishing patient engagement as a strategic priority, aligning healthcare investment decisions to drive better patient, economic, and societal outcomes.

Integrating Patient-Centered Perspectives into Sustainability Strategies

Annual analyses of patient engagement within sustainability strategies demonstrate a growing recognition of PE as a strategic priority, with its potential to accelerate sustainability commitments and serve as a key metric for ESG disclosures. This shift underscores the increasing importance of patient engagement in shaping future healthcare practices and investment strategies.

2024 Analysis
2023 Analysis

Environmental, Social, and Governance (ESG) Metrics for Patient Engagement

A menu of ESG metrics developed by leading experts is helping organizations measure and report the impact of their patient engagement initiatives across key ESG areas such as innovation, diversity, equity, inclusion (DEI), and access. These metrics are designed to meet the growing demands of investors and regulators, including the European Corporate Sustainability Reporting Directive, enabling organizations to fulfill reporting requirements and be recognized for their patient engagement accomplishments.

Explore the Metrics Selector Now

Patient Engagement in Action:
Expert Opinions

"Patients are a key pillar for Galapagos, with patient engagement now seen as a significant ingredient for future success. That is why we have dedicated one of our five long-term sustainability aspirations to patient engagement."
Marc Van Meldert
Head of Environment, Health & Safety and Sustainability Programme Manager at Galapagos
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about Marc’s experience and priorities

“Sustainability is a company objective; it engages stakeholders, and it’s something we need to report on to see how we’re doing, [..] That opens conversations throughout the organization, including senior leadership.”
Heidi Müller
Head of Site and Patient Engagement at Galapagos
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about Heidi’s experience and priorities

"To truly understand what unmet need looks like, who better to ask than patients?'"If patients find a product challenging to use, perhaps because it’s delivered intravenously, for example, that signal might not reach the manufacturer if they are too far removed from the patient community."
Joep Muijrers
General Partner at Gilde Healthcare
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about Joep’s experience and priorities

“We want it to become normal to consult regularly with the patient community to co-develop solutions, Even before we began working within the framework of sustainability, we had invited the patient community to discuss how we can work together.”
Marina Sardone
Patient Advocacy Lead
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about Marina’s experience and priorities

"We have looked at the Sustainable Development Goals for several years to help us assess how companies are contributing to good health and well-being... so we look at how companies are doing on the Access to Medicines Index"
Rogier Snijdewind
Director of Active Ownership and Responsible Investment at PGGM
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about Rogier’s experience and priorities

Project Priorities

1. Cultivating a Collaborative Task Force

Bring together patient advocates, industry professionals specializing in patient engagement and sustainability, and influential voices from the investment sector.

2. Validating Pivotal Metrics

Develop and confirm a set of key metrics that enable life sciences companies and the investment community to evaluate patient engagement initiatives effectively and integrate PE within organizational sustainability goals and reporting standards.

3. Highlighting Leaders in Patient-Centered Sustainability

Showcase health science companies that lead in integrating patient engagement within their sustainability practices.

4. Enriching the Dialogue on Patient Engagement’s Broader Impact

Deepen the conversation on how patient engagement influences healthcare processes, outcomes, and societal benefits.

5. Bridging and Connecting Patient and Investor Communities

Connecting Patient and Investor Communities: Facilitate the co-creation of tools and resources that bring together patient advocates and the investment community.

Would you like to join our efforts?
Get in touch with us now.

People and organizations behind this project

Sponsors who make this work possible

Everyone involved in this workstream