ARE YOU A LIFE SCIENCES INDUSTRY LEADER?

Join the movement that’s integrating Patient Engagement and Patient Experience Data into the heart of healthcare.

Patient engagement (PE) and Patient Experience Data (PED) are emerging as critical components in evidence generation and healthcare decision-making. Patients, industry, healthcare professionals, regulatory, and HTA bodies work together to accelerate change. Make sure your voice is included!

Important: If you represent a non-profit organization, we’d still love to connect and see how we can collaborate. Please complete the form on the right and we look forward to speaking with you soon!

Ready to learn how you can shape the future?

Interested in getting involved? Simply complete this form, and we will do the rest.

Introduction Partnership Benefits Project Outcomes

About the project

Engaging the patient community in the generation and use of patient experience data (PED) is critical for addressing unmet patient needs, facilitating evidence-based decision-making in healthcare, and driving improved health outcomes. The Patient Engagement & Patient Experience Data project is a global multistakeholder initiative, that aims to support the integration of PE and PED to generate more meaningful insights for healthcare decision-making.

This is where you come in. By joining this global, multi-stakeholder project, you can help ensure patients’ voices are embedded in all conversations. Together, we will convey the value of Patient Experience Data, address implementation needs, and translate theory into practice by tapping into existing frameworks, tools, and resources from PFMD and its diverse network.

 

Are you ready to build on the validated Global PED Navigator and peer-reviewed landscape analysis and strengthen relationships with key healthcare decision-makers?

Benefits of Patient Engagement & Patient Experience Data project sponsorship

Become part of truly global multi-stakeholder working groups to ensure the patient voice is represented in health decision-making and your work

Join more than 300 experts from more than 50 organizations representing the patient community, industry, healthcare professionals, and regulatory agencies to develop your influence and operational network. Take the opportunity to be a recognized thought leader in patient engagement and co-create the future of PE alongside your peers and fellow change makers.

Participate in the project workstream(s) to co-create and advise on project deliverables

Collaborate closely with a diverse network of peers to build collective intelligence on the state of the art in PE and PED. As a contributor, your insights will shape the project’s outcomes and deliverables, and you will benefit from hearing suggestions from others.

Support the integration of Patient Engagement & Patient Experiance Data in Regulatory and Health Technology Assessments

Regulatory & HTA bodies are calling for PE & PED. Together, we can rally our network to maximize the value of patient input in regulatory and HTA decision-making.

Highlight your organization’s collaboration on the Patient Engagement & Patient Experience Data project

As a valuable sponsor, your organization’s commitment to PE will be highlighted through visibility on the PE & PED project pages across our websites, including on PFMD.org, the PEM Suite of tools, and Patient Engagement Synapse. Our websites had over 17,000 users and more than 90,000 views in 2023.

Become a part of the Patient Engagement Open Forum (PEOF)

This forum brings together an unparalleled global network of dynamic, multicultural, and multidisciplinary visionaries to forge a brighter and healthier tomorrow FOR patients, WITH patients. Collaborate with patient advocates, industry pioneers, and regulatory powerhouses in virtual and in-person events. 
Over 15 co-creation sessions focusing on PE & PED integration have been organized to date with meaningful solutions and tangible outcomes. This is your chance to become a speaker, organize a session, and get exclusive access to discussions on PE & PED while co-creating solutions with a live audience. 

Check out the highlights video from PEOF 2023 for more.

Looking for more? You will be contributing to concrete outcomes that matter.

Co-creation of a the Patient Engagement (PE) & Patient Experience Data (PED) Integrated Navigator to ensure seamless involvement of the patient voice in the design, generation, analysis, and dissemination of patient experience data

Submission of responses to regulatory and other relevant open consultations to shape the PE landscape

Exploration of the incorporation of PE & PED for HTA/value assessment decision-making

Exploration of the engagement of patients in the co-design and understanding of real-world data

Completion of annual regulatory and HTA landscape analysis to monitor trends and updates

Communication of the importance of PE to increase diversity and representation of targeted populations in PED

Exploration of PED ‘dossiers’ to streamline and harmonize the generation and use of PED

Sponsors that make this work possible

 

Everyone involved in this workstream:

 

Contributors

 

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