A practical guide to planning, developing and assessing the quality of patient engagement activities and projects throughout the development and lifecycle of medicines.
How-To-Guide for the Early Discovery and Preclinical phases
How-To Guide for the Clinical outcome assessment development
How-To Guide for Protocol Design
How-To Guide for the Regulatory phase
How-to Guide for the post-launch phase
How-To Guide for Plain Language Summaries in peer-reviewed publications
How-To Guide for Capacity Building
2018 edition
2019 edition
2020 edition
Patient Engagement Basics
A 15-minute introduction to
patient engagement
(Level 1 – short version)
Patient Engagement Value
What is patient engagement and how to get it right (Level 1)
Patient Engagement in Practice
Your first step to making it happen (Level 2)
People
Resources
Organisations
Initiatives- Events
Performance metrics
Tools
About the PEM Suite
The PFMD network is making sure to aggregate existing knowledge and tools, identifying good practices and coherently combining them before designing accessible and useful avenues for the various audiences that will use them.
The result is the Patient Engagement Management Suite (PEM Suite). A hub of co-created tools, resources and practices to help stakeholders adopt patient engagement in a systematic, efficient and meaningful way.
