A selection of initiatives demonstrating the quality and impact of patient engagement work, serving as inspiration for those seeking to make patient engagement happen.
The methodology used is based on the Patient Engagement Quality Guidance.
How-To Guide for Patient Engagement in the Early Discovery and Preclinical phases
How-To Guide for Patient Engagement in the Clinical Outcome Assessment
development
development
How-To Guide for Protocol Design
How-To Guide for Plain Language Summaries in scientific publications
- Medicines Development Lifecycle
- Medical Technology
Multiple editions
For anyone working in the pharmaceutical or medtech sector
Patient Engagement Basics
A 15-minute introduction to
patient engagement
(Level 1 – short version)
Patient Engagement Value
What is patient engagement and how to get it right (Level 1)
Patient Engagement in Practice
Your first step to making it happen (Level 2)
PE Training
and Resources Repository
A selection of patient engagement training courses and educational materials
- Medicines Development Lifecycle
- Medical Technology
Map and Network
Connecting communities on work related to medicines development lifecycle, maternal health, precision medicine, medical technology & more
People
Organisations
Initiatives
Resources- Events
Performance metrics
Tools
Training
About the PEM Suite
The PFMD network is making sure to aggregate existing knowledge and tools, identifying good practices and coherently combining them before designing accessible and useful avenues for the various audiences that will use them.
The result is the Patient Engagement Management Suite (PEM Suite). A hub of co-created tools, resources and practices to help stakeholders adopt patient engagement in a systematic, efficient and meaningful way.
