Privacy policy
Last updated: April 28, 2017
1. General
This Privacy Policy (the “Policy“) sets out the data processing practices carried out through the use of our website https://patientfocusedmedicine.org/ (the “Site“) and our PE Global Landscape Mapping & Networking Tool (the “Platform“) found at https://involvement-mapping.patientfocusedmedicine.org/, owned and operated by PFMD (Patient Focused Medicines Development), a voluntary association with post office at Avenue Louise 231, 1050 Bruxelles (“PFMD“, “us“, “we“, or “our“).
If you have any requests concerning your Personal Data or any queries with regard to these practices please contact us at pfmd@thesynergist.org.
In this Policy, the term “Personal Data” refers to any information regarding you personally, such as your name and email address.
Please carefully read the Policy to understand how we use your Personal Data after it has been collected by us. Please read through this Policy before submitting any of your Personal Data to us. You do not need to submit any of your Personal Data when browsing our Site or using our Platform. If you do not want us to process your Personal Data, please do not submit any of your Personal Data on this Site or on the Platform. Please note, however, that without your Personal Data, you may not be able to use some of the services offered on this Site and the Platform.
This Policy may be updated from time to time. The date of the most recent revisions will appear on this page, so please visit this Policy each time prior to submitting your Personal Data.
2. When do we collect Personal Data?
We collect Personal Data from you through the use of our Site or our Platform, when you create a profile or when you post a comment or content on our Site or our Platform and every time you email us your details.
3. What Personal Data do we collect from you?
When you create a profile on our Site you will be required to provide us with the following Personal Data:
- Name and first name;
- Company name;
- Position in the Company;
- Title;
- Company’s website if any;
- Email address.
When you create a profile on our Site you can also provide us with the following Personal Data on a voluntary basis:
- Short description about you;
- Pledge to Patients;
- Photo;
- Links to your social networks accounts such as LinkedIn.
When you visit our Site or our Platform we automatically collect the following Personal Data about you via cookies and other tracking technologies:
- All the information regarding the pages you have visited on our Site and your use of our Platform.
For more information regarding cookies and other tracking technologies, please refer to Section 7 hereunder.
We will never knowingly collect sensitive Personal Data such as health related data about you or any third person. You are not allowed to provide us with sensitive Personal Data and, in the event that you do so, we reserve the right to delete those data as soon as we find out, without notice. PFMD cannot be held liable if sensitive Personal Data belonging to you or any third party is entered in breach of these stipulations.
4. What do we do with your Personal Data?
Essentially, the Site and the Platform are used to provide and share information about PFMD and patient engagement initiatives in medicines development. When you give us any Personal Data as indicated above, we use it to:
- Administer our Site and our Platform;
- Customise the content and layout of our pages for each individual visitor;
- Inform you about updates to our Site and our Platform;
- Provide you with information regarding and patient engagement initiatives in medicines development;
- Provide other users with information about you when you post content on the Platform.
We will not retain your Personal Data longer than is necessary for the proposed purposes for the processing of your Personal Data.
5. Who do we pass your Personal Data to?
We provide other users with information about you when you post content on the Platform.
We will only disclose Personal Data to government bodies and law enforcement agencies, if required by law or to comply with judicial requests. We may also share Personal Data with external service providers which we engage to process Personal Data on our behalf.
Some of the service providers we engage may be based in countries outside the European Economic Area (“EEA”). In such circumstance, we shall comply with all applicable laws and take steps to ensure that your Personal Data receives the same level of protection as within the EEA, that it is kept secure and used only in accordance with our instructions and for the purposes that we have indicated to you at the time of collection of your Personal Data.
Aside from that, we do not share your Personal Data outside PFMD with third parties.
6. International transfers of Personal Data
Since the Internet is a global environment, using the Internet to collect and process Personal Data necessarily involves the transmission of data across international boundaries. Therefore, by browsing the Site or using the Platform and submitting Personal Data to us, you acknowledge our processing of your Personal Data on this basis.
7. Cookies and other technologies
When you access and use the Site and the Platform, we use cookies and other tracking technologies, as described below.
7.1 What are cookies?
A cookie is a file which records information about how you use your device to browse the Internet (e.g., number of visits, number of pages accessed, etc.) and in particular helps us enhance your visits to the Site and your use of the Platform.
7.2 Types of cookies we use
We use cookies for several reasons. Some cookies are required for technical reasons in order for the Site and the Platform to operate, and we refer to these as “essential” or “strictly necessary” cookies.
For example, they may be used to provide a service you requested (language preference, login identification, etc.).
Other cookies that we use are served by third parties to enable us to track and target the interests of our users and to enhance the experience on our Site and your use of the Platform. Third parties cookies are served through our Site and our Platform for analytics and social media purposes.
When cookies require your agreement prior to their installation, we ask you for this via an information banner appearing on the cover page of the Site, it being understood that continued use of the Site and the Platform constitutes acceptance of these cookies.
Below you will find information about the cookies used and how to refuse them. For information on managing cookies, you can also visit: http://www.allaboutcookies.org/ or http://www.youronlinechoices.com/.
| Cookie Creator | Description | How to refuse | Duration |
| Social network cookie | Browser settings allows you to block this type of cookies | 1 year | |
| Social network cookie | Browser settings allows you to block this type of cookies | 1 year | |
| Social network cookie | Browser settings allows you to block this type of cookies | 1 year | |
| Google Analytics | Analytical cookie | https://tools.google.com/dlpage/gaoptout?hl=en | Determined by Google |
| HotJar | Analytical cookie | Browser settings allows you to block this type of cookies | 1 year |
Statistics cookies measure the number of visits, the number of pages viewed, user activity on the site and user return frequency. Your IP address is also collected to determine the town/city where you connect. The traffic statistics data is collected by the service provider and then provided to PFMD in aggregate and anonymous form in a web interface accessible only to the data controller. The data collected is not transferred to third parties, nor used for other purposes. You can block these cookies at any time by using the opt-out procedure mentioned above via the link. Third parties, including Facebook, may use cookies, web beacons, and other storage technologies to collect or receive information from your websites and elsewhere on the internet and use that information to provide measurement services and target ads.
8. Linking to other websites
The Site may contain hyperlinks to websites owned and operated by third parties. These websites have their own privacy policies and we urge you to review them. They will govern the use of Personal Data you submit whilst visiting these websites.
We do not accept any responsibility or liability for the privacy practices of such third party websites and your use of such websites is at your own risk.
9. Security
We maintain safeguards to protect the Personal Data you provide to us through the Site and the Platform against unauthorised disclosure, use, alteration, or destruction. Please note, however, that perfect security does not exist on the Internet. Therefore, while we endeavour to protect your Personal Data, when Personal Data is transferred over the Internet it may potentially be accessed and used by unauthorised parties.
10. Your right to access your Personal Data
You have the right to access and request a copy of the Personal Data that we hold on you and to request the correction or deletion of your Personal Data.
Please address your request to pfmd@thesynergist.org. We will use reasonable efforts to supply, correct or delete Personal Data about you on our files.