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Patient health data: translating stories into science

How can real-world data be captured and shared in ways that marry the needs of patients and researchers?   Patients’ lived experience is increasingly viewed as a valuable datapoint in understanding and addressing unmet health needs....
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“A pioneering opportunity”: piloting the first How-To Guide

Danielle Barron speaks to Schiffon Wong, Executive Director, Global Evidence & Value Development at EMD Serono, the biopharmaceutical business of Merck KGaA, Darmstadt, Germany, about how piloting the new “How-To Guide for Patient...

How patients can make a real impact with virtual events

The pandemic prompted patient organisations to go digital, but many lacked the know-how to host high-impact online meetings. Now, faced with ‘Zoom fatigue’ and shrinking resources, a free webinar series is offering patient...

‘COVID-19 survivors are coming out as kidney patients’ 

The pandemic prompted the National Kidney Foundation to radically change how it works, compromising fundraising drives – just as demand for its services increased Like all patient organizations, the NKF was hit with major disruptions...

Pandemic causing delayed diagnosis of rare diseases 

In normal times, people living with rare diseases face particular challenges in securing a diagnosis and accessing services. The COVID-19 outbreak has made matters much worse, according to a comprehensive survey of...

Bringing the trial to the patient

Gilead’s endeavours in patient engagement may still be in their infancy, but Head of Technology and Innovation Matt Bryant tells Danielle Barron that the organization is striving to use innovation to transform the patient experience of...

Supporting arthritis patients through the pandemic 

Due to COVID-19, patients have faced cancelled clinic visits and disruption to clinical trials. The Arthritis Foundation is working to support them through the crisis, despite significant challenges to its fundraising...

Pandemic hits patient engagement 

Interview: COVID-19 makes physical meetings more difficult, but there is a silver lining: virtual meetings can have lowered cost barriers and reduced the burden of travel. The challenge now is to make online connections more meaningful,...

Is MedTech ready for patient engagement? 

The medical technology industry is slowly expanding its patient engagement work. Barry Liden, Edwards Lifesciences, explains why the sector is playing catch-up and how listening to patients can add...

COVID-19’s twin threat for cancer patients

Cancer patients face additional risks if they develop COVID-19, but many are also suffering as services are curtailed. People with cancer may even face discrimination if ICU beds are in short supply. How can cash-strapped patient advocates...