Jan Geissler, Coordinator of the EUPATI Futures Team and PFMD Management Group member Despite growing and widespread agreement that patient involvement is essential in medicines R&D if health interventions are…
Improve global health by co-designing the future of healthcare for patients with patients
What is needed for meaningful patient engagement in medicines development?
Globally accepted guiding principles around patient engagement and co-ordination of efforts
A platform for routinely sharing experience, leveraging and integrating good practices
An effective, measurable and reliable meta-framework that integrates the voice of the patient across the medicines lifecycle
Core PFMD projects and workstreams
Understanding, connecting and synergising towards a meta-framework
SYNaPsE – your patient engagement hub
SYNaPsE – PFMD’s Global Mapping and Networking Tool aims to SYNergise Patient Engagement. It’s a dynamic user-populated platform that categorises and ‘maps’ patient engagement initiatives and frameworks, and organisations active in patient engagement.
Pledge to Patients
Individual pledge to Patients unites the whole patient engagement community under a common objective – a personal commitment to work with patients for patients. Whether you are an independent academic researcher, a clinical development lead in pharma, or a regulatory expert – the Pledge is for you and for anyone whose work impacts patients. Taking the Pledge to Patients means committing to simple, measurable and sustainable patient-centred principles, that will lead to better and more meaningful patient and healthcare outcomes.
Co-creation through Working Groups
Convened as multi-stakeholder task forces to drive co-creation of the meta-framework. Each of the 3 Working Groups is focusing on a specific phase of the medicines development lifecycle.