MAKING SYSTEMATIC PATIENT ENGAGEMENT A REALITY

A global collaborative and non-competitive coalition to Improve global health by
co-designing the future of healthcare for patients WITH patients

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CO-ELEVATE THE FUTURE OF PATIENT ENGAGEMENT WITH THE PATIENT ENGAGEMENT OPEN FORUM (PEOF)

Join a dynamic community of multicultural and multidisciplinary visionaries uniting to forge a brighter and healthier tomorrow FOR patients, WITH patients.

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ACCELERATE CHANGE WITH PE AND PED

Become a part of a multi-stakeholder project and shape the future by integrating Patient Engagement (PE) and Patient Experience Data (PED) into the heart of healthcare.

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UNITE FOR HEALTHCARE PROGRESS: PATIENTS, INVESTORS AND INDUSTRY

Join a project integrating patient-centered perspectives into Sustainability & Investment Strategies and transform the patient engagement landscape.

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Working towards 3 strategic goals to co-create on key patient engagement topics with experts.

Patient Engagement & Patient Experience Data workstreams
Patient Engagement Training Next Level
Monitoring to Learn Strategy
Patient Engagement: Investors, Sustainability & Impact
Strengthening momentum in medtech
PFMD Expansion into Asia
Patient Engagement in Post-Launch
Patient Engagement in Early Discovery and Pre-Clinical Research
The Patient Engagement Open Forum  
Enabling fair remuneration of the patient community  
PFMD’s growing exposure and impact & Synapse 
Clinical Trial Information Network
Patient Engagement Roadmap for Digital Health 

Who are we

PFMD is a not-for-profit collaborative initiative benefiting patients and health stakeholders by designing a patient-centered healthcare system WITH patients and all stakeholders. The risk of engaging patients is shifting to the risk of not engaging patients.

Key stakeholders have embraced patient engagement and continue to do it across the globe and there will be no turning back. At a minimum, meaningful Patient Engagement enhances all players’ License to Operate in the health environment.

People behind PFMD

What we do

In PFMD, we believe patient engagement is on the cusp of taking a strategic turn, to scale in drug development, to broaden its geographic spread and to expand in other health systems, in digital health and data or in devices.

Our belief is that an investment in the patient community will deliver rich rewards, ensuring better outcomes for patients.

People behind PFMD

Our work

The patient engagement community has proven that patient engagement is not an abstract ideal but a system that can be defined, measured, and embedded into healthcare. Discover more about the ambition, the results and the contributors making it happen.

GLOBAL NETWORK

Synapse

The Patient Engagement Network

GLOBAL NETWORK

Synapse - The Patient Engagement Network

Aggregating the ecosystem in a single place. Find everything about patient engagement and make your content available to the community.
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TOOLBOX

PEM Suite

TOOLBOX

PEM Suite

An integrated toolbox for systematic patient engagement offering practical tools to plan, assess and execute any patient engagement initiative.
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REPORTS

Annual Reports

REPORTS

Annual Reports

Discover the program evolution through annual reports.
Check out the latest one

PE TRAINING

Patient Engagement Training

PE TRAINING

Patient Engagement Training

Tap into 200+ years of collective patient engagement experience with this unique co-created training available for the pharma & medtech sectors.
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PATIENT EXPERIENCE DATA

Patient Experience Data

PATIENT EXPERIENCE DATA

Patient Experience Data

Interested in improving evidence generation & healthcare decision-making for & with patients?
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PEOF

Patient Engagement Open Forum (PEOF)

PEOF

Patient Engagement Open Forum (PEOF)

Bring your energy into focus with PEOF event. Would you like to join the global movement shaping the future of healthcare?
Contribute now

MONITORING TO LEARN

Monitoring To Learn

MONITORING TO LEARN

Monitoring To Learn

An easy-to-use digital solution is here to help you analyse your patient engagement initiative's quality, process, outcome & impact.
Try it now

CLINICAL TRIALS

Clinical Trials Network

CLINICAL TRIALS

Clinical Trials Network
Explore an open, non-competitive repository of clinical protocols enriched with additional structure & information for better matching.
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FAIR REMUNERATION TOOLS

Fair Remuneration Tools

FAIR REMUNERATION TOOLS

Fair Remuneration Tools

A practical digital tool to define patient engagements & drive transparent dialogue on fair remuneration.
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PE GUIDELINES

Patient Engagement Guidelines

PE GUIDELINES

Patient Engagement Guidelines

Use the Guidelines for country codes of conduct that govern interactions between the pharmaceutical industry & patient community.
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PFMD Membership

Meet the contributors enabling systematic patient engagement and shaping its
ecosystem globally, at all levels of health systems.

Click to discover each organization activity in patient engagement.

Associate members

Interested in joining our work?

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