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Fast-moving medtech accelerating pivot towards patient engagement

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Pharma got a head start on working with patients, but some medical technology companies could catch up quickly if they have the right tools, templates and examples of success  The medical technology sector is large, diverse and populated...
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Fast-moving medtech accelerating pivot towards patient engagement

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Pharma got a head start on working with patients, but some medical technology companies could catch up quickly if they have the right tools, templates and examples of success  The medical technology sector is large, diverse and populated...

Digital health: how patients can shape responsible data management 

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Big data has big potential to change healthcare. But, if patients are to buy into this vision of the future – and share their data – the benefits to their care must be made clear    The capacity of digital tools to...

Hearing the voices of children in medicines R&D

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The views of patients are too often ignored by researchers. Now some clinicians and companies are seeing the value of engaging with younger people  Young patients are up against it. Depending on their illness, they may feel very unwell,...

PEOF 2021 How to Connect Patients to Digital Health

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Google the phrase “digital health” and you’ll get roughly 50 million results. But what does it actually mean for patients in practice?    An umbrella area allowing exponential scaling in terms of data, networks, information,...

Putting cardiovascular patients at the heart of the technology revolution

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The Global Heart Hub is empowering patients to play a central role in improving their health care. Its founder, Neil Johnson, sees opportunities for medtech and digital health companies to engage with people affected by cardiovascular...

The road to patient-centred medtech

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As medical technology companies become more patient-centred, industry leaders seek to enter the patient engagement fast lane. There is still some distance to travel. The medical technology sector is highly diverse, populated by thousands...

Virtual events: tips for patient organisations

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As more patient advocates embrace online meetings, what’s the secret to attracting, engaging and keeping your audience? A series of webinars takes you through the 33 questions you need to ask to create impactful events.    The...

The challenges of engaging patients with rare diseases 

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Patient engagement requires a critical mass of patients with the time, expertise and language skills to work with medicines developers. For rare diseases, these patients are hard to find, but EU initiatives offer...

Coping with COVID: Pandemic putting pressure on vulnerable patients 

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Vulnerable patients are at risk of serious illness if they are infected by the SARS-CoV-2 virus. By disrupting research, clinic visits and patient engagement meeting, the pandemic will also have a long-term impact, writes Gary...

“A pioneering opportunity”: piloting the first How-To Guide

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Danielle Barron speaks to Schiffon Wong, Executive Director, Global Evidence & Value Development at EMD Serono, the biopharmaceutical business of Merck KGaA, Darmstadt, Germany, about how piloting the new “How-To Guide for Patient...

How patients can make a real impact with virtual events

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The pandemic prompted patient organisations to go digital, but many lacked the know-how to host high-impact online meetings. Now, faced with ‘Zoom fatigue’ and shrinking resources, a free webinar series is offering patient...

‘COVID-19 survivors are coming out as kidney patients’ 

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The pandemic prompted the National Kidney Foundation to radically change how it works, compromising fundraising drives – just as demand for its services increased Like all patient organizations, the NKF was hit with major disruptions...

Bringing the trial to the patient

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Gilead’s endeavours in patient engagement may still be in their infancy, but Head of Technology and Innovation Matt Bryant tells Danielle Barron that the organization is striving to use innovation to transform the patient experience of...

Supporting arthritis patients through the pandemic 

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Due to COVID-19, patients have faced cancelled clinic visits and disruption to clinical trials. The Arthritis Foundation is working to support them through the crisis, despite significant challenges to its fundraising...

Pandemic hits patient engagement 

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Interview: COVID-19 makes physical meetings more difficult, but there is a silver lining: virtual meetings can have lowered cost barriers and reduced the burden of travel. The challenge now is to make online connections more meaningful,...

Is MedTech ready for patient engagement? 

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The medical technology industry is slowly expanding its patient engagement work. Barry Liden, Edwards Lifesciences, explains why the sector is playing catch-up and how listening to patients can add...

COVID-19’s twin threat for cancer patients

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Cancer patients face additional risks if they develop COVID-19, but many are also suffering as services are curtailed. People with cancer may even face discrimination if ICU beds are in short supply. How can cash-strapped patient advocates...

Patient engagement training: changing company culture one step at a time

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MSD rolled out the first module of the PFMD training course in early 2020. Jan Nissen, Vice President of Patient Innovation & Enterprise Communications for MSD, says the company is achieving culture change organically rather than...

How COVID-19 changes clinical trials – for good

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Pandemic sees clinical trials halted but some go virtual, benefiting patients, writes Danielle Barron With everything else upended by the coronavirus pandemic, it’s no surprise that clinical trials have also fallen victim to widespread...

The final piece of the puzzle: capacity building in patient engagement

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Pharmacist Anne-Lise Ducournau Lichtenberg explains what the PFMD How-To module on Capacity Building is and why it is essential that every actor in the patient engagement ecosystem can access relevant and up-to-date educational content to...

Protecting everyone’s interests: the RAPP project

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The result of a truly collaborative project, a series of reasonable legal agreement templates, offers protection for both patients and pharmaceutical companies, explains Federica Castiglione of Novartis Achieving meaningful patient...

Involving patients in drug development – from the start

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Patient engagement in preclinical research is a new phenomenon. Dr David Feldman, National Kidney Foundation, says a forthcoming PFMD How-To Guide will help connect researchers and patients in the earliest stages of medicines...

Training can help to build capacity for patient engagement

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Prof Benedikt Van Nieuwenhove, Managing Director of ECCRT, discusses the forthcoming PFMD ‘How-To Module for Capacity Building’ and how the COVID-19 pandemic is shifting attitudes to online...

Ensuring the patient’s voice is heard

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Esther Krofah, MPP, is the executive director of FasterCures, a center of the world-renowned Milken Institute. Having recently joined the board, she brings her extensive experience in the government, nonprofit, and for-profit sectors to...

“We need to take patient involvement to new levels”

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Dr Sanja Njegic is the Global Head of Patient Partnership at F. Hoffmann La-Roche Ltd (Roche). She is responsible for facilitating early and systematic engagement with patient communities across the product lifecycle through...

‘We need to build infrastructure to support patient-centricity’ 

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Dr Anthony Yanni, SVP and Global Head, Patient Centricity at Astellas, brings clinical and industry experience to the PFMD Board. His recipe for advancing patient engagement centres on establishing systems to maximise how patient insights...

Nobody has ever regretted patient engagement

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David Haerry has been an active patient advocate since 1997. A prominent member of EUPATI, David was also involved in several European and global research networks and research collaborations. He co-chaired the Patient and Consumer Working...

Acknowledging the value of patient input

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When it comes to ascribing value to patient involvement in the development of innovative medicines and med-tech, different stakeholders may have different perspectives. That was the finding of an interesting new report commissioned by...

5 minutes with… the American Migraine Foundation

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As part of our series to help the patient engagement community get to know one another, we spoke to Nim Lalvani, Executive Director of the American Migraine Foundation, about advocacy and involving patients in scientific advisory...

Unlocking the potential of cohort studies

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Research studies following groups of individuals can answer vital medical questions, such as why people suffer from a health problem; or what determines recovery. They are, however, expensive and cannot always be applied broadly. Synchros,...

A PE trailblazer committed to improving patients’ lives

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In a fragmented and fast-evolving patient engagement landscape, the need to align stakeholders, harmonise approaches and perspectives and share best practices is critical as we strive to deliver better patient outcomes and drug development...

Developing the patient engagement system

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Nicholas Brooke, CEO of PFMD, tells Gary Finnegan why solving the patient compensation conundrum will unlock the power of patient engagement Patients, industry and regulators are making patient engagement (PE) the norm in medicines...

Doctors are paid for their expertise, what about patients?

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Patients are increasingly seen as playing a valuable role in setting research priorities, designing clinical trials and informing market access decisions. But sometimes they are the only people in the room expected to give their time...

How the National Kidney Foundation is piloting the PEQG

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The National Kidney Foundation is the leading organisation in the US dedicated to the awareness, prevention and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions of patients and their families, and...

Putting patient engagement on the map at ISPOR US

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Dr Oleksandr Gorbenko displayed a PFMD poster at the New Orleans conference, attracting strong interest from experts in health economics and outcomes Patients are increasingly involved in clinical research as companies and academics seek...

Making the case for patient engagement

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Danielle Barron speaks to MediPace founder Guy Yeoman about his latest efforts to spread the word on patient engagement.  When it comes to patient engagement, empowerment is the name of the game. That’s according to Guy Yeoman, founder...

EU must prioritise patient engagement in health research 

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The European Commission, health industry organisations, and patient groups are busily crafting a bold new public-private partnership. Citizen and patient involvement will be a key focus. With plenty of existing tools to help make patient...

How Parkinson’s UK is piloting the Patient Engagement Quality Guidance

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Parkinson’s UK is the UK’s leading charity supporting people affected by Parkinson’s, a neurological condition for which there is currently no cure. The charity’s mission is to find a cure and improve life for everyone affected by...

EU researchers to have access to ‘pool’ of patient experts

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The value of including patients in medical research is now widely accepted. Yet one of the challenges for scientists and companies keen to embrace the concept of patient engagement is identifying suitably-qualified patient experts to work...

FDA calls on industry to speed up trials process

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The FDA appears to be taking its regulatory role to new levels as it seeks to shape a better medicines development ecosystem. The recent statement by FDA Commissioner Dr Scott Gottlieb focused on new strategies to modernise clinical trials...

Different patients, different solutions: PFMD at the EFGCP Annual Meeting

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Danielle Barron speaks to PFMD co-founder Tony Hoos about his recent participation at the EFGCP Annual Conference in Brussels What is an acceptable level of uncertainty? What is an acceptable benefit/risk ratio? These questions and many...

The wide-ranging impact of patient access

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Patient engagement means opening the door to patients for meaningful dialogue and contributions. A recent op ed in In Vivo explored several ways in which patient access can truly permeate the entire patient journey, especially in relation...