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The impact of patient engagement

Patient health data: translating stories into science

by Gary Finnegan · April 25, 2022
How can real-world data be captured and shared in ways that marry the needs of patients and researchers?   Patients’ lived experience is increasingly viewed as a valuable datapoint in understanding and addressing unmet health needs....
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Patient engagement in practice

Doctors are paid for their expertise, what about patients?

by Gary Finnegan · September 5, 2019
Patients are increasingly seen as playing a valuable role in setting research priorities, designing clinical trials and informing market access decisions. But sometimes they are the only people in the room expected to give their time...
Patient engagement in practice

How the National Kidney Foundation is piloting the PEQG

by Danielle Barron · July 25, 2019
The National Kidney Foundation is the leading organisation in the US dedicated to the awareness, prevention and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions of patients and their families, and...
PFMD partners & projects

Fair Market Value: Survey reveals new insights on patient compensation 

by Gary Finnegan · July 23, 2019
What does a fair approach to compensating patients for contributing to medicines research and development look like? We asked health stakeholders.  There is broad agreement that patients and patient advocates should be compensated for the...
PFMD partners & projects

Putting patient engagement on the map at ISPOR US

by Gary Finnegan · July 18, 2019
Dr Oleksandr Gorbenko displayed a PFMD poster at the New Orleans conference, attracting strong interest from experts in health economics and outcomes Patients are increasingly involved in clinical research as companies and academics seek...
Patient engagement in practice

Making the case for patient engagement

by Danielle Barron · July 8, 2019
Danielle Barron speaks to MediPace founder Guy Yeoman about his latest efforts to spread the word on patient engagement.  When it comes to patient engagement, empowerment is the name of the game. That’s according to Guy Yeoman, founder...
Patient engagement in practice

EU must prioritise patient engagement in health research 

by Gary Finnegan · June 26, 2019
The European Commission, health industry organisations, and patient groups are busily crafting a bold new public-private partnership. Citizen and patient involvement will be a key focus. With plenty of existing tools to help make patient...
Patient engagement in practice

How Parkinson’s UK is piloting the Patient Engagement Quality Guidance

by Gary Finnegan · June 11, 2019
Parkinson’s UK is the UK’s leading charity supporting people affected by Parkinson’s, a neurological condition for which there is currently no cure. The charity’s mission is to find a cure and improve life for everyone affected by...