Recent Stories

Wanted: a global approach to patient remuneration

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Patients should be compensated for their contributions to public engagement activities. A new project aims to co-create global tools to enable ethical, transparent, fair interactions between the patient community and pharmaceutical...
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Fast-moving medtech accelerating pivot towards patient engagement

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Pharma got a head start on working with patients, but some medical technology companies could catch up quickly if they have the right tools, templates and examples of success  The medical technology sector is large, diverse and populated...
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‘We need to build infrastructure to support patient-centricity’ 

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Dr Anthony Yanni, SVP and Global Head, Patient Centricity at Astellas, brings clinical and industry experience to the PFMD Board. His recipe for advancing patient engagement centres on establishing systems to maximise how patient insights...

Nobody has ever regretted patient engagement

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David Haerry has been an active patient advocate since 1997. A prominent member of EUPATI, David was also involved in several European and global research networks and research collaborations. He co-chaired the Patient and Consumer Working...

Promoting the interests of patients in research

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The Health Research Authority plays an important role in driving patient engagement in the UK. We asked Jim Elliott, Public Involvement Lead at the Health Research Authority & a newly-appointed PFMD Board Member, how the HRA sees the...

Acknowledging the value of patient input

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When it comes to ascribing value to patient involvement in the development of innovative medicines and med-tech, different stakeholders may have different perspectives. That was the finding of an interesting new report commissioned by...

5 minutes with… the American Migraine Foundation

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As part of our series to help the patient engagement community get to know one another, we spoke to Nim Lalvani, Executive Director of the American Migraine Foundation, about advocacy and involving patients in scientific advisory...

These projects are laying the basis of a healthcare environment

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With 34 years of professional experience, 18 of which are in the medicines industry, Daniel De Schryver has also been involved in aspects of patient engagement for more than 14 years. As Patient Engagement & Advocacy Lead, EMEA at The...

The first step is often the most significant

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Dr Paula Wray, senior public involvement manager at NIHR INVOLVE in the UK has spent nine years in public involvement in applied health research. She attends around 25 patient engagement meetings every year and thus is more than up to...

A wonderful reference tool

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Mary Alice Dwyer PharmD, is a Principal/Consultant at Medical Innovation and Insights who has spent 28 years in the medicines industry, including four of those involved in all aspects of patient engagement across the medicines development...

Refreshing to see so many great examples

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As a Patient Leader, Consultant and Researcher, Simon Stones attends on average 50 patient engagement events each year. Unsurprisingly, his seven years of experience in the field was invaluable when it came to evaluating patient engagement...