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Patient health data: translating stories into science

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How can real-world data be captured and shared in ways that marry the needs of patients and researchers?   Patients’ lived experience is increasingly viewed as a valuable datapoint in understanding and addressing unmet health needs....
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Developing the patient engagement system

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Nicholas Brooke, CEO of PFMD, tells Gary Finnegan why solving the patient compensation conundrum will unlock the power of patient engagement Patients, industry and regulators are making patient engagement (PE) the norm in medicines...

Doctors are paid for their expertise, what about patients?

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Patients are increasingly seen as playing a valuable role in setting research priorities, designing clinical trials and informing market access decisions. But sometimes they are the only people in the room expected to give their time...

How the National Kidney Foundation is piloting the PEQG

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The National Kidney Foundation is the leading organisation in the US dedicated to the awareness, prevention and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions of patients and their families, and...

Fair Market Value: Survey reveals new insights on patient compensation 

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What does a fair approach to compensating patients for contributing to medicines research and development look like? We asked health stakeholders.  There is broad agreement that patients and patient advocates should be compensated for the...

Putting patient engagement on the map at ISPOR US

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Dr Oleksandr Gorbenko displayed a PFMD poster at the New Orleans conference, attracting strong interest from experts in health economics and outcomes Patients are increasingly involved in clinical research as companies and academics seek...

Making the case for patient engagement

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Danielle Barron speaks to MediPace founder Guy Yeoman about his latest efforts to spread the word on patient engagement.  When it comes to patient engagement, empowerment is the name of the game. That’s according to Guy Yeoman, founder...

EU must prioritise patient engagement in health research 

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The European Commission, health industry organisations, and patient groups are busily crafting a bold new public-private partnership. Citizen and patient involvement will be a key focus. With plenty of existing tools to help make patient...