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The impact of patient engagement

Patient health data: translating stories into science

by Gary Finnegan · April 25, 2022
How can real-world data be captured and shared in ways that marry the needs of patients and researchers?   Patients’ lived experience is increasingly viewed as a valuable datapoint in understanding and addressing unmet health needs....
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Patient engagement in practice

Acknowledging the value of patient input

by Danielle Barron · February 5, 2020
When it comes to ascribing value to patient involvement in the development of innovative medicines and med-tech, different stakeholders may have different perspectives. That was the finding of an interesting new report commissioned by...
Patient engagement in practice

5 minutes with… the American Migraine Foundation

by Gary Finnegan · January 9, 2020
As part of our series to help the patient engagement community get to know one another, we spoke to Nim Lalvani, Executive Director of the American Migraine Foundation, about advocacy and involving patients in scientific advisory...
Patient engagement in practice

These projects are laying the basis of a healthcare environment

by Danielle Barron · October 22, 2019
With 34 years of professional experience, 18 of which are in the medicines industry, Daniel De Schryver has also been involved in aspects of patient engagement for more than 14 years. As Patient Engagement & Advocacy Lead, EMEA at The...
Patient engagement in practice

The first step is often the most significant

by Danielle Barron · October 21, 2019
Dr Paula Wray, senior public involvement manager at NIHR INVOLVE in the UK has spent nine years in public involvement in applied health research. She attends around 25 patient engagement meetings every year and thus is more than up to...
Patient engagement in practice

A wonderful reference tool

by Danielle Barron · October 14, 2019
Mary Alice Dwyer PharmD, is a Principal/Consultant at Medical Innovation and Insights who has spent 28 years in the medicines industry, including four of those involved in all aspects of patient engagement across the medicines development...
Patient engagement in practice

Refreshing to see so many great examples

by Danielle Barron · October 14, 2019
As a Patient Leader, Consultant and Researcher, Simon Stones attends on average 50 patient engagement events each year. Unsurprisingly, his seven years of experience in the field was invaluable when it came to evaluating patient engagement...
Patient engagement in practice

Patient engagement is a journey

by Danielle Barron · October 14, 2019
Dr Katherine Deane, BSc PhD, is a Senior Lecturer in Research in the School of Health Sciences at the University of East Anglia,...
Patient engagement in practice

A valuable resource

by Danielle Barron · October 14, 2019
Thierry Escudier is Head of Clinical Development at Pierre Fabre Medicament. He has over 30 years in the pharmaceutical industry and is an expert in clinical development. In recent years he has gotten involved in patient engagement, and he...
Patient engagement in practice

Unlocking the potential of cohort studies

by Gary Finnegan · October 4, 2019
Research studies following groups of individuals can answer vital medical questions, such as why people suffer from a health problem; or what determines recovery. They are, however, expensive and cannot always be applied broadly. Synchros,...
Patient engagement in practice

A PE trailblazer committed to improving patients’ lives

by Danielle Barron · September 23, 2019
In a fragmented and fast-evolving patient engagement landscape, the need to align stakeholders, harmonise approaches and perspectives and share best practices is critical as we strive to deliver better patient outcomes and drug development...
Patient engagement in practice

Developing the patient engagement system

by Gary Finnegan · September 19, 2019
Nicholas Brooke, CEO of PFMD, tells Gary Finnegan why solving the patient compensation conundrum will unlock the power of patient engagement Patients, industry and regulators are making patient engagement (PE) the norm in medicines...