The patient's corner

by Danielle Barron · August 31, 2020

How COVID-19 changes clinical trials – for good

Pandemic sees clinical trials halted but some go virtual, benefiting patients, writes Danielle Barron With everything else upended by the coronavirus pandemic, it’s no surprise that clinical trials have...

PFMD partners & projects

by gulwish · July 16, 2020

The Patient Engagement Open Forum 2020

The third and by far the “biggest” Patient Engagement Open Forum to date kicked off on June  25th with over a 1,000 registered attendees across the whole program. This...

The patient's corner

by Gary Finnegan · July 8, 2020

Coronavirus vaccine trials: Are patients ahead of the curve?

Researchers and ethicists are usually hesitant to deliberately expose volunteers to a virus, but thousands of people have signed up to help fast-track clinical...

Tools for patient engagement

by Danielle Barron · June 24, 2020

The final piece of the puzzle: capacity building in patient engagement

Pharmacist Anne-Lise Ducournau Lichtenberg explains what the PFMD How-To module on Capacity Building is and why it is essential that every actor in the patient engagement ecosystem can access...

Uncategorized

by Gary Finnegan · June 22, 2020

A shared vision: bringing empowered patients to the table

PFMD & EUPATI have a common objective: supporting all stakeholders in making patient engagement the new normal, explain PFMD founder, Nicholas Brooke, and EUPATI Coordinator, Maria...

PFMD partners & projects

by Danielle Barron · June 9, 2020

Patient information leaflets: “Putting patients’ needs first is vitally important”

Identifying the information needs of patients and healthcare professionals (HCPs) when using medicines is vital to ensuring patients have optimum health outcomes. A new PFMD How-to Module aims to...

PFMD partners & projects

by Gary Finnegan · June 3, 2020

5 minutes with…Doug Noland, Executive Director, Patient Partnerships, Astellas Pharma

We spoke to Doug Noland, Executive Director, Patient Partnerships at Astellas Pharma, about the company’s view of patient engagement as an essential element of medicines development Tell us about...

Tools for patient engagement

by Gary Finnegan · May 27, 2020

Researchers and patients benefit from co-designing clinical trials – a new guide aims to make it easier to collaborate

Patient representatives and researchers are working with PFMD on a forthcoming guide to involving patients in clinical trials. We speak to two patient advocates about how collaboration can make...

Tools for patient engagement

by Danielle Barron · May 19, 2020

Implementing patient engagement in clinical trial design: challenges and opportunities

Even in the best of circumstances, clinical research is a complex and challenging endeavour. In recent years, however, the pharmaceutical industry has realised that the unique insight only a...

Tools for patient engagement

by Danielle Barron · May 13, 2020

Protecting everyone’s interests: the RAPP project

The result of a truly collaborative project, a series of reasonable legal agreement templates, offers protection for both patients and pharmaceutical companies, explains Federica Castiglione of Novartis Achieving meaningful...

PFMD partners & projects

by Gary Finnegan · May 12, 2020

Involving patients in drug development – from the start

Patient engagement in preclinical research is a new phenomenon. Dr David Feldman, National Kidney Foundation, says a forthcoming PFMD How-To Guide will help connect researchers and patients in the...

PFMD partners & projects

by Gary Finnegan · May 5, 2020

Training can help to build capacity for patient engagement

Prof Benedikt Van Nieuwenhove, Managing Director of ECCRT, discusses the forthcoming PFMD ‘How-To Module for Capacity Building’ and how the COVID-19 pandemic is shifting attitudes to online...