How patient advocacy groups are shaping the future of rare diseases in Europe
· January 3, 2019Patients play a central role in the 24 European Reference Networks established to advance the diagnosis and care of rare diseases There are between 5,000 and 8,000 rare diseases affecting an estimated 30 million people in Europe. Defining, diagnosing and treating these conditions is a complex task because patient populations are small, and expertise is dispersed across the continent. This...
