PFMD partners & project

by Gary Finnegan · July 23, 2019

Fair Market Value: Survey reveals new insights on patient compensation 

What does a fair approach to compensating patients for contributing to medicines research and development look like? We asked health stakeholders.  There is broad agreement that patients and patient...

PFMD partners & project

by Gary Finnegan · July 18, 2019

Putting patient engagement on the map at ISPOR US

Dr Oleksandr Gorbenko displayed a PFMD poster at the New Orleans conference, attracting strong interest from experts in health economics and outcomes Patients are increasingly involved in clinical research...

Tools for patient engagement

by Danielle Barron · July 8, 2019

Making the case for patient engagement

Danielle Barron speaks to MediPace founder Guy Yeoman about his latest efforts to spread the word on patient engagement.  When it comes to patient engagement, empowerment is the name...

The impact of patient engagement

by Gary Finnegan · July 1, 2019

Patients & partnership: involving citizens in shaping the future of healthcare 

After more than a decade at the helm of the European Patients’ Forum, Nicola Bedlington has seen a revolution in the role of patients in medicines development and in...

Patient engagement in practice

by Gary Finnegan · June 26, 2019

EU must prioritise patient engagement in health research 

The European Commission, health industry organisations, and patient groups are busily crafting a bold new public-private partnership. Citizen and patient involvement will be a key focus. With plenty of...

Patient engagement in practice

by Ifeanyi Sargeant · June 18, 2019

Piloting the Patient Engagement Quality Guidance in health technology assessment

Health Technology Assessment (HTA) organizations aim to ensure that medical interventions have measurable benefits for patients, provide clinical effectiveness and are cost-effective within the context of the general health...

Patient engagement in practice

by Gary Finnegan · June 11, 2019

How Parkinson’s UK is piloting the Patient Engagement Quality Guidance

Parkinson’s UK is the UK’s leading charity supporting people affected by Parkinson’s, a neurological condition for which there is currently no cure. The charity’s mission is to find a...

Patient engagement in practice

by Gary Finnegan · June 3, 2019

EU researchers to have access to ‘pool’ of patient experts

The value of including patients in medical research is now widely accepted. Yet one of the challenges for scientists and companies keen to embrace the concept of patient engagement...

Tools for patient engagement

by Nicholas Brooke · April 29, 2019

FDA calls on industry to speed up trials process

The FDA appears to be taking its regulatory role to new levels as it seeks to shape a better medicines development ecosystem. The recent statement by FDA Commissioner Dr...

The impact of patient engagement

by Gary Finnegan · April 24, 2019

New medicines 19% more likely to launch when trials are co-designed with patients

Drugs developed using patient-centric clinical trials are more likely to reach the market and more quickly adopted by payers, a new study reveals Developing innovative medicines is becoming more...

Patient engagement in practice

by Gary Finnegan · April 4, 2019

Wisdom of the crowd: how the public can help decide what research to fund

An innovative funding agency in Austria is crowdsourcing opinions to set research priorities – and engaging patients at every step of the scientific process Patients are playing an increasingly...

PFMD partners & project

by Danielle Barron · March 29, 2019

Framework Development

From the beginning, PFMD worked to develop a systematic approach that ensures co-creation based on existing knowledge and balanced collaboration with all relevant stakeholders. This allows us to move...