New Blog - Patient Focused Medicines Development

Recent Stories

How COVID-19 changes clinical trials – for good

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Pandemic sees clinical trials halted but some go virtual, benefiting patients, writes Danielle Barron With everything else upended by the coronavirus pandemic, it’s no surprise that clinical trials have...
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The Patient Engagement Open Forum 2020

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The third and by far the “biggest” Patient Engagement Open Forum to date kicked off on June  25th with over a 1,000 registered attendees across the whole program. This...
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Protecting everyone’s interests: the RAPP project

The result of a truly collaborative project, a series of reasonable legal agreement templates, offers protection for both patients and pharmaceutical companies, explains Federica Castiglione of Novartis Achieving meaningful...
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Involving patients in drug development – from the start

Patient engagement in preclinical research is a new phenomenon. Dr David Feldman, National Kidney Foundation, says a forthcoming PFMD How-To Guide will help connect researchers and patients in the...
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Training can help to build capacity for patient engagement

Prof Benedikt Van Nieuwenhove, Managing Director of ECCRT, discusses the forthcoming PFMD ‘How-To Module for Capacity Building’ and how the COVID-19 pandemic is shifting attitudes to online...
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How-To Modules for Patient Engagement 2020

Author: Chi Pakarinen, Project Manager at The Synergist Six co-creation Working Groups have been busy devising the various “How-To” modules, each focused on different activities and stages of the...
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Ensuring the patient’s voice is heard

Esther Krofah, MPP, is the executive director of FasterCures, a center of the world-renowned Milken Institute. Having recently joined the board, she brings her extensive experience in the government,...
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“We need to take patient involvement to new levels”

Dr Sanja Njegic is the Global Head of Patient Partnership at F. Hoffmann La-Roche Ltd (Roche). She is responsible for facilitating early and systematic engagement with patient communities across...
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