Tools for patient engagement

by Gary Finnegan · September 5, 2019

Doctors are paid for their expertise, what about patients?

Patients are increasingly seen as playing a valuable role in setting research priorities, designing clinical trials and informing market access decisions. But sometimes they are the only people in...

Tools for patient engagement

by Gary Finnegan · September 3, 2019

Calculating reimbursement rates for patient engagement in medicines development

A new Fair Market Value tool will help to calculate appropriate fees for patients involved in drug development, writes Gary Finnegan Compensating patient advocates for their time and expertise...

Patient engagement in practice

by Ifeanyi Sargeant · August 16, 2019

Applying the Patient Engagement Quality Guidance across a whole organisation – the INVOLVE experience

INVOLVE is a National Advisory Group and part of the UK’s National Institute for Health Research. For over 20 years, this government-funded organisation has been providing advice and resources...

PFMD partners & project

by Danielle Barron · July 25, 2019

How the National Kidney Foundation is piloting the PEQG

The National Kidney Foundation is the leading organisation in the US dedicated to the awareness, prevention and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions...

PFMD partners & project

by Roxana · July 24, 2019

Participate now in the PARADIGM open consultation on a sustainability plan for patient engagement

As part of our close collaboration with PARADIGM to make patient engagement happen, PFMD is participating in an open consultation on scenarios for the long-term sustainability of patient engagement in...

PFMD partners & project

by Gary Finnegan · July 23, 2019

Fair Market Value: Survey reveals new insights on patient compensation 

What does a fair approach to compensating patients for contributing to medicines research and development look like? We asked health stakeholders.  There is broad agreement that patients and patient...

PFMD partners & project

by Gary Finnegan · July 18, 2019

Putting patient engagement on the map at ISPOR US

Dr Oleksandr Gorbenko displayed a PFMD poster at the New Orleans conference, attracting strong interest from experts in health economics and outcomes Patients are increasingly involved in clinical research...

Tools for patient engagement

by Danielle Barron · July 8, 2019

Making the case for patient engagement

Danielle Barron speaks to MediPace founder Guy Yeoman about his latest efforts to spread the word on patient engagement.  When it comes to patient engagement, empowerment is the name...

The impact of patient engagement

by Gary Finnegan · July 1, 2019

Patients & partnership: involving citizens in shaping the future of healthcare 

After more than a decade at the helm of the European Patients’ Forum, Nicola Bedlington has seen a revolution in the role of patients in medicines development and in...

Patient engagement in practice

by Gary Finnegan · June 26, 2019

EU must prioritise patient engagement in health research 

The European Commission, health industry organisations, and patient groups are busily crafting a bold new public-private partnership. Citizen and patient involvement will be a key focus. With plenty of...

Patient engagement in practice

by Ifeanyi Sargeant · June 18, 2019

Piloting the Patient Engagement Quality Guidance in health technology assessment

Health Technology Assessment (HTA) organizations aim to ensure that medical interventions have measurable benefits for patients, provide clinical effectiveness and are cost-effective within the context of the general health...

Patient engagement in practice

by Gary Finnegan · June 11, 2019

How Parkinson’s UK is piloting the Patient Engagement Quality Guidance

Parkinson’s UK is the UK’s leading charity supporting people affected by Parkinson’s, a neurological condition for which there is currently no cure. The charity’s mission is to find a...