The patient's corner

by Gary Finnegan · January 6, 2021

‘COVID-19 survivors are coming out as kidney patients’ 

The pandemic prompted the National Kidney Foundation to radically change how it works, compromising fundraising drives – just as demand for its services increased Like all patient organizations, the...

The patient's corner

by Gary Finnegan · December 17, 2020

Pandemic causing delayed diagnosis of rare diseases 

In normal times, people living with rare diseases face particular challenges in securing a diagnosis and accessing services. The COVID-19 outbreak has made matters much worse, according to a...

The impact of patient engagement

by Danielle Barron · December 16, 2020

Bringing the trial to the patient

Gilead’s endeavours in patient engagement may still be in their infancy, but Head of Technology and Innovation Matt Bryant tells Danielle Barron that the organization is striving to use...

The patient's corner

by Gary Finnegan · December 15, 2020

Supporting arthritis patients through the pandemic 

Due to COVID-19, patients have faced cancelled clinic visits and disruption to clinical trials. The Arthritis Foundation is working to support them through the crisis, despite significant challenges to...

The impact of patient engagement

by Gary Finnegan · December 8, 2020

Stress, anxiety and loneliness: how the pandemic added to the burden of people with dementia  

Owen Miller of  Alzheimer Europe explains how the coronavirus crisis has affected patient care, research and efforts to involve people with Alzheimer’s in...

The impact of patient engagement

by Gary Finnegan · December 3, 2020

Pandemic hits patient engagement 

Interview: COVID-19 makes physical meetings more difficult, but there is a silver lining: virtual meetings can have lowered cost barriers and reduced the burden of travel. The challenge now...

Patient engagement in practice

by Gary Finnegan · November 23, 2020

Is MedTech ready for patient engagement? 

The medical technology industry is slowly expanding its patient engagement work. Barry Liden, Edwards Lifesciences, explains why the sector is playing catch-up and how listening to patients can add...

The patient's corner

by Gary Finnegan · November 20, 2020

COVID-19’s twin threat for cancer patients

Cancer patients face additional risks if they develop COVID-19, but many are also suffering as services are curtailed. People with cancer may even face discrimination if ICU beds are...

Patient engagement training

by Gary Finnegan · November 18, 2020

‘Want to discuss patient engagement? Do this training first’

Lode Dewulf, a leading Patient Affairs coach, says Chief Patient Officers should insist that colleagues show they are serious by completing basic PE...

Patient engagement training

by Gary Finnegan · November 12, 2020

Patient engagement training: changing company culture one step at a time

MSD rolled out the first module of the PFMD training course in early 2020. Jan Nissen, Vice President of Patient Innovation & Enterprise Communications for MSD, says the company...

Patient engagement training

by Gary Finnegan · October 23, 2020

Patient engagement is a mindset

At Roche, training is helping to make #patientengagement a central part of all discussions across the organisation, says Sanja Njegic, Dr. Pharm, Global Head of Patient Partnership and Séverine Wollenschneider...

Patient engagement training

by Gary Finnegan · October 9, 2020

Should a ‘PE license’ be mandatory to work in the medicines ecosystem?

As patient engagement (PE) gains momentum, some argue that everyone from pharma executives and patient groups to regulators and payers should be required to earn a PE...