Tools for patient engagement

by Gary Finnegan · May 27, 2020

Researchers and patients benefit from co-designing clinical trials – a new guide aims to make it easier to collaborate

Patient representatives and researchers are working with PFMD on a forthcoming guide to involving patients in clinical trials. We speak to two patient advocates about how collaboration can make...

Tools for patient engagement

by Danielle Barron · May 19, 2020

Implementing patient engagement in clinical trial design: challenges and opportunities

Even in the best of circumstances, clinical research is a complex and challenging endeavour. In recent years, however, the pharmaceutical industry has realised that the unique insight only a...

Tools for patient engagement

by Danielle Barron · May 13, 2020

Protecting everyone’s interests: the RAPP project

The result of a truly collaborative project, a series of reasonable legal agreement templates, offers protection for both patients and pharmaceutical companies, explains Federica Castiglione of Novartis Achieving meaningful...

PFMD partners & projects

by Gary Finnegan · May 12, 2020

Involving patients in drug development – from the start

Patient engagement in preclinical research is a new phenomenon. Dr David Feldman, National Kidney Foundation, says a forthcoming PFMD How-To Guide will help connect researchers and patients in the...

PFMD partners & projects

by Gary Finnegan · May 5, 2020

Training can help to build capacity for patient engagement

Prof Benedikt Van Nieuwenhove, Managing Director of ECCRT, discusses the forthcoming PFMD ‘How-To Module for Capacity Building’ and how the COVID-19 pandemic is shifting attitudes to online...

Tools for patient engagement

by Chi · April 24, 2020

How-To Modules for Patient Engagement 2020

Author: Chi Pakarinen, Project Manager at The Synergist Six co-creation Working Groups have been busy devising the various “How-To” modules, each focused on different activities and stages of the...

PFMD partners & projects

by Danielle Barron · April 23, 2020

Ensuring the patient’s voice is heard

Esther Krofah, MPP, is the executive director of FasterCures, a center of the world-renowned Milken Institute. Having recently joined the board, she brings her extensive experience in the government,...

PFMD partners & projects

by Danielle Barron · April 21, 2020

“We need to take patient involvement to new levels”

Dr Sanja Njegic is the Global Head of Patient Partnership at F. Hoffmann La-Roche Ltd (Roche). She is responsible for facilitating early and systematic engagement with patient communities across...

PFMD partners & projects

by Gary Finnegan · April 15, 2020

‘We need to build infrastructure to support patient-centricity’ 

Dr Anthony Yanni, SVP and Global Head, Patient Centricity at Astellas, brings clinical and industry experience to the PFMD Board. His recipe for advancing patient engagement centres on establishing...

The impact of patient engagement

by Gary Finnegan · April 8, 2020

‘HTA bodies and regulators have a shared interest in understanding patient experiences’

Neil Bertelsen, PFMD Board member, sees parallels in how Health Technology Agencies (HTA) and medicines regulators are working to incorporate patient perspectives into...

PFMD partners & projects

by Danielle Barron · March 30, 2020

Nobody has ever regretted patient engagement

David Haerry has been an active patient advocate since 1997. A prominent member of EUPATI, David was also involved in several European and global research networks and research collaborations....

PFMD partners & projects

by Gary Finnegan · March 11, 2020

Promoting the interests of patients in research

The Health Research Authority plays an important role in driving patient engagement in the UK. We asked Jim Elliott, Public Involvement Lead at the Health Research Authority & a...