Tools for patient engagement

by Danielle Barron · October 14, 2019

Refreshing to see so many great examples

As a Patient Leader, Consultant and Researcher, Simon Stones attends on average 50 patient engagement events each year. Unsurprisingly, his seven years of experience in the field was invaluable...

Tools for patient engagement

by Danielle Barron · October 14, 2019

Patient engagement is a journey

Dr Katherine Deane, BSc PhD, is a Senior Lecturer in Research in the School of Health Sciences at the University of East Anglia,...

Patient engagement in practice

by Danielle Barron · October 14, 2019

A valuable resource

Thierry Escudier is Head of Clinical Development at Pierre Fabre Medicament. He has over 30 years in the pharmaceutical industry and is an expert in clinical development. In recent...

Patient engagement in practice

by Gary Finnegan · October 4, 2019

Unlocking the potential of cohort studies

Research studies following groups of individuals can answer vital medical questions, such as why people suffer from a health problem; or what determines recovery. They are, however, expensive and...

Patient engagement in practice

by Danielle Barron · September 23, 2019

A PE trailblazer committed to improving patients’ lives

In a fragmented and fast-evolving patient engagement landscape, the need to align stakeholders, harmonise approaches and perspectives and share best practices is critical as we strive to deliver better...

Patient engagement in practice

by Gary Finnegan · September 19, 2019

Developing the patient engagement system

Nicholas Brooke, CEO of PFMD, tells Gary Finnegan why solving the patient compensation conundrum will unlock the power of patient engagement Patients, industry and regulators are making patient engagement...

Tools for patient engagement

by Gary Finnegan · September 5, 2019

Doctors are paid for their expertise, what about patients?

Patients are increasingly seen as playing a valuable role in setting research priorities, designing clinical trials and informing market access decisions. But sometimes they are the only people in...

Tools for patient engagement

by Gary Finnegan · September 3, 2019

Calculating reimbursement rates for patient engagement in medicines development

A new Fair Market Value tool will help to calculate appropriate fees for patients involved in drug development, writes Gary Finnegan Compensating patient advocates for their time and expertise...

Patient engagement in practice

by Ifeanyi Sargeant · August 16, 2019

Applying the Patient Engagement Quality Guidance across a whole organisation – the INVOLVE experience

INVOLVE is a National Advisory Group and part of the UK’s National Institute for Health Research. For over 20 years, this government-funded organisation has been providing advice and resources...

PFMD partners & project

by Danielle Barron · July 25, 2019

How the National Kidney Foundation is piloting the PEQG

The National Kidney Foundation is the leading organisation in the US dedicated to the awareness, prevention and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions...

PFMD partners & project

by Roxana · July 24, 2019

Participate now in the PARADIGM open consultation on a sustainability plan for patient engagement

As part of our close collaboration with PARADIGM to make patient engagement happen, PFMD is participating in an open consultation on scenarios for the long-term sustainability of patient engagement in...

PFMD partners & project

by Gary Finnegan · July 23, 2019

Fair Market Value: Survey reveals new insights on patient compensation 

What does a fair approach to compensating patients for contributing to medicines research and development look like? We asked health stakeholders.  There is broad agreement that patients and patient...