Patient engagement in practice

by Ifeanyi Sargeant · June 18, 2019

Piloting the Patient Engagement Quality Guidance in health technology assessment

Health Technology Assessment (HTA) organizations aim to ensure that medical interventions have measurable benefits for patients, provide clinical effectiveness and are cost-effective within the context of the general health...

Patient engagement in practice

by Gary Finnegan · June 11, 2019

How Parkinson’s UK is piloting the Patient Engagement Quality Guidance

Parkinson’s UK is the UK’s leading charity supporting people affected by Parkinson’s, a neurological condition for which there is currently no cure. The charity’s mission is to find a...

Patient engagement in practice

by Gary Finnegan · June 3, 2019

EU researchers to have access to ‘pool’ of patient experts

The value of including patients in medical research is now widely accepted. Yet one of the challenges for scientists and companies keen to embrace the concept of patient engagement...

Tools for patient engagement

by Nicholas Brooke · April 29, 2019

FDA calls on industry to speed up trials process

The FDA appears to be taking its regulatory role to new levels as it seeks to shape a better medicines development ecosystem. The recent statement by FDA Commissioner Dr...

The impact of patient engagement

by Gary Finnegan · April 24, 2019

New medicines 19% more likely to launch when trials are co-designed with patients

Drugs developed using patient-centric clinical trials are more likely to reach the market and more quickly adopted by payers, a new study reveals Developing innovative medicines is becoming more...

Patient engagement in practice

by Gary Finnegan · April 4, 2019

Wisdom of the crowd: how the public can help decide what research to fund

An innovative funding agency in Austria is crowdsourcing opinions to set research priorities – and engaging patients at every step of the scientific process Patients are playing an increasingly...

PFMD partners & project

by Danielle Barron · March 29, 2019

Framework Development

From the beginning, PFMD worked to develop a systematic approach that ensures co-creation based on existing knowledge and balanced collaboration with all relevant stakeholders. This allows us to move...

Patient engagement in practice

by Danielle Barron · March 29, 2019

Reduce the burden of legal agreements with WECAN and MPE

Collaboration between pharmaceutical companies and patient advocates typically requires both parties to sign contracts covering various topics. These written agreements can often be too long and complex, and can...

Patient engagement in practice

by Danielle Barron · March 29, 2019

Putting a figure on patient engagement

As part of the Fair Market Value global effort, we launched a survey in mid-December 2018. This was open to all types of stakeholders, and the goal was to...

Tools for patient engagement

by Danielle Barron · March 29, 2019

Synapse – your tool for patient engagement

Synapse has evolved in the last year, from mapping to connecting the patient engagement ecosystem. The platform has grown 18% in initiatives and 30% in organisations since 2017, further...

The patient's corner

by Danielle Barron · March 29, 2019

Creating the demand for qualitative patient engagement at industry level 

As part of creating the conditions and building the demand for systematic patient engagement we are currently taking a collaborative leadership role in defining and co-creating a patient engagement...

PFMD partners & project

by Danielle Barron · March 18, 2019

Different patients, different solutions: PFMD at the EFGCP Annual Meeting

Danielle Barron speaks to PFMD co-founder Tony Hoos about his recent participation at the EFGCP Annual Conference in Brussels What is an acceptable level of uncertainty? What is an...