Blog - Patient Focused Medicines Development

Different patients, different solutions: PFMD at the EFGCP Annual Meeting

by Danielle Barron · March 18, 2019

Danielle Barron speaks to PFMD co-founder Tony Hoos about his recent participation at the EFGCP Annual Conference in Brussels What is an acceptable level of uncertainty? What is an acceptable benefit/risk ratio? These questions and many others were asked during the European Forum of Good Clinical Practice 2019 annual conference. Held in Brussels in late February, the meeting sought to answer...

by Danielle Barron · February 27, 2019

The wide-ranging impact of patient access

Patient engagement means opening the door to patients for meaningful dialogue and contributions. A recent op ed in In Vivo explored several...

by Gary Finnegan · February 12, 2019

Europe highlights patient role in innovative medicines

The EU Innovative Medicines Initiative (IMI) is encouraging patients and patient groups to play their part in developing therapies of the...

by Gary Finnegan · February 5, 2019

Cancer patients to advise on Ireland’s oncology services

A 15-member Cancer Patient Advisory Committee is to play an active role in overseeing the planning and deliver of cancer services in...

by Gary Finnegan · January 29, 2019

Big pharma, small pharma – the biotech industry is embracing Plain Language Summaries

Smaller companies may not be able to match the resources and expertise of larger players, but their agility helps them move quickly to put...

by Gary Finnegan · January 24, 2019

Plain language summaries: how patients are helping bring the fruits of research to the public

Patients can play a key role in producing clear summaries of scientific papers. The result will make science more democratic and boost the...

by Gary Finnegan · January 3, 2019

How patient advocacy groups are shaping the future of rare diseases in Europe

Patients play a central role in the 24 European Reference Networks established to advance the diagnosis and care of rare diseases There are...

by Ifeanyi Sargeant · December 19, 2018

2018’s essential reads in patient engagement

Clinical practice guidelines provide expert recommendations that drive patient treatment decisions. Armstrong and colleagues convened two...

by Gary Finnegan · December 19, 2018

Celebrating a happy anniversary with an eye on the future

The PFMD end of the year Board meeting (25th of October 2018) was held, by a happy and nostalgic coincidence, in the exact same room where...

by Gary Finnegan · December 10, 2018

Wanted: patient engagement co-creators

PFMD is inviting the patient engagement contributors community to join a global collective effort to advance patient engagement...