The impact of patient engagement

The Patient Doctor Tango

by Ifeanyi Sargeant · October 25, 2017

Sarah Krüg, Executive Director of CANCER101, Founder of the Health Collaboratory and PFMD board member explores the pivotal role the patient-doctor relationship plays in effective patient engagement in a video of her recent Tedx Talk in...

PFMD partners & projects

Progress and achievements towards meaningful and consistent Patient Engagement

by Nicholas Brooke · October 17, 2017

It is now just 2 years since we had the PFMD kick-off meeting in Brussels and 2 years of collaborative efforts to co-create a more systematic approach to patient engagement. It’s exciting that we are beginning to see the fruits of these...

Tools for patient engagement

Breaking the record for patients

by Roxana Radu · October 9, 2017

PFMD’s Pledge to Patients is a personal promise to make the small changes that add up to a real cultural shift. It’s been designed to be simple, meaningful and shareable to inspire anyone committed to PE to make their own Pledge. Click...

PFMD partners & projects

Stakeholder Expectations Matrix Update

by Roxana Radu · October 9, 2017

The manuscript for the Stakeholder Expectations Matrix is in preparation and planned for submission to Health Expectations Journal. We’ve also had an abstract accepted for poster presentation at the International Society For...

Tools for patient engagement

SYNaPsE – Your patient engagement hub just got better

by Roxana Radu · October 9, 2017

SYNaPsE – PFMD’s Global Mapping and Networking Tool aims to SYNergise Patient Engagement. It’s a dynamic user-populated platform that categorizes and ‘maps’ patient engagement initiatives and frameworks, and organisations...

Patient engagement in practice

Is there a patient engagement opportunity in the Pharmacovigilance space? Share your views

by Anne-Marie Hamoir · October 9, 2017

The two-day World Drug Safety Conference held in Berlin (12-13 September) covered what’s new in drug safety, the recent EMA revisions and guidance documents plus pharmacovigilance (PV) processes outside Europe. We attended and want...

PFMD partners & projects

Co-creation through collaboration – PFMD meta-framework

by Roxana Radu · October 9, 2017

We’ve held several multi-stakeholder workshops to drive co-creation of a meta-framework for PE (click here for background to the project). One of the priority outputs from the workshops was PE Quality Guidance and Quality Criteria....

The impact of patient engagement

“The patient is in the center of everything we do” – from words to action

by Nicholas Brooke · September 14, 2017

“The patient is in the center of everything we do”. This is the kind of statement we keep hearing across industry departments, clinical institutions, patient advocacy organisations or regulators. But even though it’s a common...

PFMD partners & projects

The value of co-creation in patient engagement and the shift in healthcare delivery

by Roxana Radu · September 13, 2017

Soren Eik Skovlund, Chief Patient Officer, Drugstars and Founder of sorenskovlund.com talks about the value of co-creation in patient engagement and the shift happening in healthcare delivery: It is so important that we in the healthcare...

Patient engagement in practice

From bench to bedside and beyond – patient engagement from a patient advocate’s perspective

by Roxana Radu · August 30, 2017

PFMD member Russell Wheeler, Leber’s Hereditary Optic Neuropathy Society, talks about his journey to becoming a patient advocate in medicines development: Leber’s Hereditary Optic Neuropathy (LHON) is a rare genetic condition...

The impact of patient engagement

Needs assessment is essential for successful patient engagement and co-creation

by Roxana Radu · August 22, 2017

PFMD member Anna Truppel Hartman, Head of Patient Engagement, F. Hoffmann – La Roche talks about the importance of understanding what patients need for effective patient engagement and co-creation in medicines development: “We need...

Patient engagement in practice

The importance of collaboration in patient engagement – a patient advocate and scientist’s perspective

by Roxana Radu · August 22, 2017

PFMD member Dawn Richards and Vice President of the Canadian Arthritis Patient Alliance (CAPA) and Director of Patient and Public Engagement at Clinical Trials Ontario shares her views about the importance of collaboration in patient...