Recent Stories

Are cardiovascular patients ready for the digital revolution? 

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The adoption of digital technologies has accelerated dramatically during the pandemic. Now patients want more influence on how technologies are designed and how their data is handled  The digital tools needed to support remote...
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Patient remuneration: have your say

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Now is your chance to help to share harmonised global principles on remunerating patients for interactions with industry  As patients and industry move towards new standards on how the patient community collaborates with healthcare...
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The first step is often the most significant

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Dr Paula Wray, senior public involvement manager at NIHR INVOLVE in the UK has spent nine years in public involvement in applied health research. She attends around 25 patient engagement meetings every year and thus is more than up to...

A wonderful reference tool

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Mary Alice Dwyer PharmD, is a Principal/Consultant at Medical Innovation and Insights who has spent 28 years in the medicines industry, including four of those involved in all aspects of patient engagement across the medicines development...

Refreshing to see so many great examples

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As a Patient Leader, Consultant and Researcher, Simon Stones attends on average 50 patient engagement events each year. Unsurprisingly, his seven years of experience in the field was invaluable when it came to evaluating patient engagement...

Patient engagement is a journey

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Dr Katherine Deane, BSc PhD, is a Senior Lecturer in Research in the School of Health Sciences at the University of East Anglia,...

A valuable resource

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Thierry Escudier is Head of Clinical Development at Pierre Fabre Medicament. He has over 30 years in the pharmaceutical industry and is an expert in clinical development. In recent years he has gotten involved in patient engagement, and he...

Unlocking the potential of cohort studies

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Research studies following groups of individuals can answer vital medical questions, such as why people suffer from a health problem; or what determines recovery. They are, however, expensive and cannot always be applied broadly. Synchros,...

A PE trailblazer committed to improving patients’ lives

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In a fragmented and fast-evolving patient engagement landscape, the need to align stakeholders, harmonise approaches and perspectives and share best practices is critical as we strive to deliver better patient outcomes and drug development...

Developing the patient engagement system

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Nicholas Brooke, CEO of PFMD, tells Gary Finnegan why solving the patient compensation conundrum will unlock the power of patient engagement Patients, industry and regulators are making patient engagement (PE) the norm in medicines...

Doctors are paid for their expertise, what about patients?

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Patients are increasingly seen as playing a valuable role in setting research priorities, designing clinical trials and informing market access decisions. But sometimes they are the only people in the room expected to give their time...

How the National Kidney Foundation is piloting the PEQG

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The National Kidney Foundation is the leading organisation in the US dedicated to the awareness, prevention and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions of patients and their families, and...