Reaching our common goal of meaningful patient engagement and involvement in medicines development and lifecycle requires all stakeholders to not only have a common purpose and vision but also clear understanding and alignment of expectations.

That’s why we have launched the Stakeholder Expectations Matrix – an ambitious survey-based project to better understand and clarify stakeholder expectations from patient involvement in drug development.


We want to know how these expectations align/conflict with each other, whether they are ‘realistic’, and how can they be met. Stakeholders have been grouped into 7 categories (patients/patient organisations; healthcare providers; payers/purchasers; policymakers/regulators; pharma/life sciences industry; researchers/academics; and research funders) and around 50 in-depth interviews are being carried out to do a deep-dive of stakeholder expectations in a qualitative approach.

The survey results will be used to develop a Stakeholder Expectations Matrix that provides a baseline of understanding for collaboration in patient engagement. The Stakeholder Expectations Matrix and results will be published and will also be used to inform the ongoing co-creation of the meta-framework for meaningful and consistent patient engagement in medicines development and lifecycle.

We’re currently carrying out the qualitative survey phase and will be using the insights we capture in a wider quantitative survey to get a more comprehensive picture. Want to take part? Contact us.