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Patient health data: translating stories into science

How can real-world data be captured and shared in ways that marry the needs of patients and researchers?   Patients’ lived experience is increasingly viewed as a valuable datapoint in understanding and addressing unmet health needs....
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Patient engagement training: changing company culture one step at a time

MSD rolled out the first module of the PFMD training course in early 2020. Jan Nissen, Vice President of Patient Innovation & Enterprise Communications for MSD, says the company is achieving culture change organically rather than...

Patient engagement is a mindset

At Roche, training is helping to make #patientengagement a central part of all discussions across the organisation, says Sanja Njegic, Dr. Pharm, Global Head of Patient Partnership and Séverine Wollenschneider PhD, Senior Patient...

How COVID-19 changes clinical trials – for good

Pandemic sees clinical trials halted but some go virtual, benefiting patients, writes Danielle Barron With everything else upended by the coronavirus pandemic, it’s no surprise that clinical trials have also fallen victim to widespread...

The Patient Engagement Open Forum 2020

The third and by far the “biggest” Patient Engagement Open Forum to date kicked off on June  25th with over a 1,000 registered attendees across the whole program. This year, the Open Forum stretches over 8 virtual events and 18...

The final piece of the puzzle: capacity building in patient engagement

Pharmacist Anne-Lise Ducournau Lichtenberg explains what the PFMD How-To module on Capacity Building is and why it is essential that every actor in the patient engagement ecosystem can access relevant and up-to-date educational content to...