Patient engagement in practice

Patient engagement training: changing company culture one step at a time

by Gary Finnegan · November 12, 2020

MSD rolled out the first module of the PFMD training course in early 2020. Jan Nissen, Vice President of Patient Innovation & Enterprise Communications for MSD, says the company is achieving culture change organically rather than...

Patient engagement training

Patient engagement is a mindset

by Gary Finnegan · October 23, 2020

At Roche, training is helping to make #patientengagement a central part of all discussions across the organisation, says Sanja Njegic, Dr. Pharm, Global Head of Patient Partnership and Séverine Wollenschneider PhD, Senior Patient...

Patient engagement in practice

Should a ‘PE license’ be mandatory to work in the medicines ecosystem?

by Gary Finnegan · October 9, 2020

As patient engagement (PE) gains momentum, some argue that everyone from pharma executives and patient groups to regulators and payers should be required to earn a PE...

Patient engagement in practice

Novartis leadership support boosts Patient Engagement training for employees

by Gary Finnegan · October 2, 2020

Making patient engagement (PE) mainstream at large organizations is a huge challenge, but the backing of company leadership has set the Swiss pharma giant up for a paradigm shift Novartis has 109,000 employees around the world. It has been...

The patient's corner

How COVID-19 changes clinical trials – for good

by Danielle Barron · August 31, 2020

Pandemic sees clinical trials halted but some go virtual, benefiting patients, writes Danielle Barron With everything else upended by the coronavirus pandemic, it’s no surprise that clinical trials have also fallen victim to widespread...

PFMD partners & projects

The Patient Engagement Open Forum 2020

by Gulwish Ahmed · July 16, 2020

The third and by far the “biggest” Patient Engagement Open Forum to date kicked off on June  25th with over a 1,000 registered attendees across the whole program. This year, the Open Forum stretches over 8 virtual events and 18...

The patient's corner

Coronavirus vaccine trials: Are patients ahead of the curve?

by Gary Finnegan · July 8, 2020

Researchers and ethicists are usually hesitant to deliberately expose volunteers to a virus, but thousands of people have signed up to help fast-track clinical...

Tools for patient engagement

The final piece of the puzzle: capacity building in patient engagement

by Danielle Barron · June 24, 2020

Pharmacist Anne-Lise Ducournau Lichtenberg explains what the PFMD How-To module on Capacity Building is and why it is essential that every actor in the patient engagement ecosystem can access relevant and up-to-date educational content to...

Uncategorized

A shared vision: bringing empowered patients to the table

by Gary Finnegan · June 22, 2020

PFMD & EUPATI have a common objective: supporting all stakeholders in making patient engagement the new normal, explain PFMD founder, Nicholas Brooke, and EUPATI Coordinator, Maria...

Patient engagement in practice

Patient information leaflets: “Putting patients’ needs first is vitally important”

by Danielle Barron · June 9, 2020

Identifying the information needs of patients and healthcare professionals (HCPs) when using medicines is vital to ensuring patients have optimum health outcomes. A new PFMD How-to Module aims to do just that, explains Meghna Joshi-von...

Patient engagement in practice

5 minutes with…Doug Noland, Executive Director, Patient Partnerships, Astellas Pharma

by Gary Finnegan · June 3, 2020

We spoke to Doug Noland, Executive Director, Patient Partnerships at Astellas Pharma, about the company’s view of patient engagement as an essential element of medicines development Tell us about Astellas’ key patient engagement...

Patient engagement in practice

Researchers and patients benefit from co-designing clinical trials – a new guide aims to make it easier to collaborate

by Gary Finnegan · May 27, 2020

Patient representatives and researchers are working with PFMD on a forthcoming guide to involving patients in clinical trials. We speak to two patient advocates about how collaboration can make studies more appealing to patients and reduce...