Making systematic patient engagement a reality across

Medicine and device lifecycles, digital health, data and health systems for better outcomes.

The risk of engaging patients is shifting to the risk of not engaging patients. Key stakeholders have embraced patient engagement and continue to do it across the globe and there will be no turning back.

At a minimum, meaningful Patient Engagement enhances all players’ License to Operate in the health environment.

PFMD is a not-for-profit collaborative initiative benefiting patients and health stakeholders by designing a patient-centred healthcare system WITH patients and all stakeholders.

PFMD Strategic Approach

Drive systematic, meaningful and impactful PE outcomes

Extend the patient engagement community

Transform the healthcare ecosystem to actively supporting & enabling PE

What used to be a fragmented, nice to have activity, now became a global movement ready to be integrated across health systems.
Discover more about the ambition, the results and the partnership making it happen.

About the program

The ambition

Patient engagement is no longer the exception. Meaningful, sustainable partnerships with the patient community are becoming part of how the healthcare ecosystem defines quality, strategy, and innovation. Where once there was hesitation, now there is momentum. What was once seen as risky is increasingly seen as essential.

Over the past ten years, PFMD has supported this shift — not by acting alone, but by building the conditions to act together. That’s what makes this work different: the community hasn’t just developed the tools, we’ve enabled systems to use them.

10 Years of Impact: A Decade of Transforming Patient Engagement. Together the patient engagement co-created the tools and guidance needed to do patient engagement well. Together, we built Synapse to map, connect and support practitioners around the globe. Together, we grew from 10 founding members to 62, with thousands more contributing through working groups, public consultations, and real-world implementation.

14 patient

organisations

14 industries

7 others (regulators,

hospitals, HTA bodies etc)

Program highlights

Discover the program evolution through annual reports

Aggregating the ecosystem in a single place.

PEM Suite – an integrated toolbox for systematic patient engagement

PFMD partners

Associate Members

What’s hot in patient engagement