Reaching our common goal of meaningful patient engagement and involvement in medicines development and lifecycle requires all stakeholders to not only have a common purpose and vision but also clear understanding and alignment of expectations.

That’s why we have launched the Stakeholder Expectations Matrix – an ambitious survey-based project to understand and clarify each other’s hopes and expectations from patient involvement in drug development.

We want to know how these expectations align/conflict with each other, whether they are ‘realistic’, and how can they be met. We have grouped stakeholders into 7 main categories (patients/patient organisations; healthcare providers; payers/purchasers; policymakers/regulators; pharma/life sciences industry; researchers/academics; and research funders) and are carrying out around 60 in-depth interviews to do a deep-dive of stakeholder expectations in a qualitative approach.

We will use the survey results to develop a Stakeholder Expectations Matrix that provides a baseline understanding for collaboration in patient engagement. The Stakeholder Expectations Matrix and results will be published and will also be used to inform the ongoing co-creation of the meta-framework for meaningful and consistent patient engagement in medicines development and lifecycle.

The qualitative survey phase is in full swing and – depending on what we find from analysis of the results – intend to use the insights captured in a wider quantitative survey to get a more comprehensive picture.

Understanding what each of us as individual stakeholder groups expect and want from patient engagement is essential if we are to have alignment, mutual interpretation, realistic and achievable goals and to prevent disappointments that can hamper even the most worthwhile endeavours.

Contact PFMD for more information or to take part.