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Wanted: a global approach to patient remuneration

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Patients should be compensated for their contributions to public engagement activities. A new project aims to co-create global tools to enable ethical, transparent, fair interactions between the patient community and pharmaceutical...
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Fast-moving medtech accelerating pivot towards patient engagement

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Pharma got a head start on working with patients, but some medical technology companies could catch up quickly if they have the right tools, templates and examples of success  The medical technology sector is large, diverse and populated...
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Making the case for patient engagement

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Danielle Barron speaks to MediPace founder Guy Yeoman about his latest efforts to spread the word on patient engagement.  When it comes to patient engagement, empowerment is the name of the game. That’s according to Guy Yeoman, founder...

EU must prioritise patient engagement in health research 

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The European Commission, health industry organisations, and patient groups are busily crafting a bold new public-private partnership. Citizen and patient involvement will be a key focus. With plenty of existing tools to help make patient...

How Parkinson’s UK is piloting the Patient Engagement Quality Guidance

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Parkinson’s UK is the UK’s leading charity supporting people affected by Parkinson’s, a neurological condition for which there is currently no cure. The charity’s mission is to find a cure and improve life for everyone affected by...

EU researchers to have access to ‘pool’ of patient experts

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The value of including patients in medical research is now widely accepted. Yet one of the challenges for scientists and companies keen to embrace the concept of patient engagement is identifying suitably-qualified patient experts to work...

FDA calls on industry to speed up trials process

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The FDA appears to be taking its regulatory role to new levels as it seeks to shape a better medicines development ecosystem. The recent statement by FDA Commissioner Dr Scott Gottlieb focused on new strategies to modernise clinical trials...

Framework Development

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From the beginning, PFMD worked to develop a systematic approach that ensures co-creation based on existing knowledge and balanced collaboration with all relevant stakeholders. This allows us to move away from isolated and fragmented...

Reduce the burden of legal agreements with WECAN and MPE

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Collaboration between pharmaceutical companies and patient advocates typically requires both parties to sign contracts covering various topics. These written agreements can often be too long and complex, and can be ambiguous in nature....

Putting a figure on patient engagement

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As part of the Fair Market Value global effort, we launched a survey in mid-December 2018. This was open to all types of stakeholders, and the goal was to better understand their views and expectations on the topic. We have received more...