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Patient remuneration: have your say

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Now is your chance to help to share harmonised global principles on remunerating patients for interactions with industry  As patients and industry move towards new standards on how the patient community collaborates with healthcare...
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Wanted: a global approach to patient remuneration

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Patients should be compensated for their contributions to public engagement activities. A new project aims to co-create global tools to enable ethical, transparent, fair interactions between the patient community and pharmaceutical...
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Celebrating a happy anniversary with an eye on the future

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The PFMD end of the year Board meeting (25th of October 2018) was held, by a happy and nostalgic coincidence, in the exact same room where the decision to first form PFMD was made in December 2014. 2018 was a big year for patient...

Wanted: patient engagement co-creators

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PFMD is inviting the patient engagement contributors community to join a global collective effort to advance patient engagement Patient-Focused Medicines Development (PFMD) welcomes expressions of interest to join patient engagement work...

My journey into the world of patient engagement

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Guest blog post authored by Paola Kruger (patient expert) and edited by Gary Finnegan (Editorial Coordinator, Patients Focused Medicine Development) After my diagnosis, I became a patient expert. Here is what I learned. I was diagnosed...

EUPATI Belgium: how education can drive patient engagement

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Danielle Derijcke, EUPATI Belgium board member, tells Gary Finnegan how the ‘patients academy’ can empower patients to add value to medicines development The European Patients Academy (EUPATI) was launched in 2012 as a five-year...

Cochrane embraces Patient Engagement

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If you were looking for a sign that patient engagement is going mainstream, here it is: this year’s Cochrane Colloquium shone its powerful spotlight on the need to involve patients at every step of the healthcare system. Cochrane is a...

Building the next generation of patient advocates

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Interview with Dr Derick Mitchell, Chief Executive of  Irish Platform for Patient Organisations, Science & Industry (IPPOSI) As patient engagement reaches a tipping point, it’s worth looking back at some of the original players in...

FDA prioritizes patient engagement

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The past two decades have witnessed the evolution of patient engagement as a priority at the Food and Drug Administration (FDA) in the US. Since the first patient group was established for HIV/AIDs patients in 1988, the FDA has been slowly...

Pledging to patients: what can you to do enhance patient engagement?

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Dr Cyndi Grossman, Director, explains why FasterCures, a center of the Milken Institute  is encouraging patient engagement advocates to take the PFMD pledge In the coming weeks, FasterCures aims to increase the number of pledges to 1,000...

Penning the Book of Good Practices

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Earlier this year, PFMD launched the first edition of the Book of Good Practices in patient engagement. The unique book details a first wave of dynamic and innovative working examples illustrating the Patient Engagement Quality Guidance....