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Patient remuneration: have your say

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Now is your chance to help to share harmonised global principles on remunerating patients for interactions with industry  As patients and industry move towards new standards on how the patient community collaborates with healthcare...
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Wanted: a global approach to patient remuneration

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Patients should be compensated for their contributions to public engagement activities. A new project aims to co-create global tools to enable ethical, transparent, fair interactions between the patient community and pharmaceutical...
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Reduce the burden of legal agreements with WECAN and MPE

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Collaboration between pharmaceutical companies and patient advocates typically requires both parties to sign contracts covering various topics. These written agreements can often be too long and complex, and can be ambiguous in nature....

Putting a figure on patient engagement

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As part of the Fair Market Value global effort, we launched a survey in mid-December 2018. This was open to all types of stakeholders, and the goal was to better understand their views and expectations on the topic. We have received more...

Synapse – your tool for patient engagement

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Synapse has evolved in the last year, from mapping to connecting the patient engagement ecosystem. The platform has grown 18% in initiatives and 30% in organisations since 2017, further adding to the diversity of the tool. This kind of...

Different patients, different solutions: PFMD at the EFGCP Annual Meeting

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Danielle Barron speaks to PFMD co-founder Tony Hoos about his recent participation at the EFGCP Annual Conference in Brussels What is an acceptable level of uncertainty? What is an acceptable benefit/risk ratio? These questions and many...

The wide-ranging impact of patient access

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Patient engagement means opening the door to patients for meaningful dialogue and contributions. A recent op ed in In Vivo explored several ways in which patient access can truly permeate the entire patient journey, especially in relation...

Europe highlights patient role in innovative medicines

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The EU Innovative Medicines Initiative (IMI) is encouraging patients and patient groups to play their part in developing therapies of the future. With a budget of €3.3 billion (2014-2020), the IMI is the world’s largest public-private...

Cancer patients to advise on Ireland’s oncology services

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A 15-member Cancer Patient Advisory Committee is to play an active role in overseeing the planning and deliver of cancer services in Ireland. In what is a first for Irish healthcare, the group met this month and is expected to hold...

2018’s essential reads in patient engagement

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Clinical practice guidelines provide expert recommendations that drive patient treatment decisions. Armstrong and colleagues convened two groups to look at clinical guidelines in dementia – one with patient representation and one...