PFMD partners & projects

Multinational coalition focus on co-creation of meta-framework to benefit patients globally

by Nicholas Brooke · June 3, 2016

An independent global coalition of stakeholders has recognised the need to create an efficient, measurable and reliable meta-framework to integrate the voice of the patient across the lifecycle of medicines development. Members of Patient...

Patient engagement in practice

What are the challenges linked to patient engagement

by Nicholas Brooke · April 5, 2016

Geraint Thomas, Patient Affairs Director at Amgen Europe, explains the series of challenges linked to patient engagement that the industry is currently facing: “This is a huge multi-stakeholder complex environment that we are working in...

Patient engagement in practice

Patients aren’t just looking for a clinical outcome

by Nicholas Brooke · March 17, 2016

In a Pharma Talk Radio interview, Marc Boutin – Chief Executive Officer of the National Health Council – explains what the ‘chronic care trifecta’ means for patients. “The ‘chronic care trifecta’ means that patients are...

PFMD partners & projects

Stakeholders need to work together to embed patients in medicines R&D

by Nicholas Brooke · March 15, 2016

In a Pharma Talk Radio interview, Anton (Tony) Hoos – Head of Medical for Amgen Europe – explains why stakeholders need to work together in medicines development. “What we hope for is that all stakeholders involved in drug...

PFMD partners & projects

Moving towards a shared decision making partnership model

by Roxana Radu · March 14, 2016

Nirmala Singh, formerly Patient Engagement Director at the National Kidney Foundation shares her views about the effect patient engagement will have on the healthcare sector in a video filmed at the DIA 2016...

The impact of patient engagement

What does partnering with patients mean?

by Nicholas Brooke · March 11, 2016

In a Pharma Talk Radio interview, Marc Boutin – Chief Executive Officer of the National Health Council – shares his views on what partnering with patients means. “Partnering with patients in terms of medicines development means...

Patient engagement in practice

We are moving into a new era of patient emancipation

by Roxana Radu · February 16, 2016

PFMD member Bettina Ryll, founder of Patient Melanoma Network Europe and Chair of the ESMO Patient Advocacy Working Group shares her views about the development of meaningful patient engagement in a video filmed at the DIA 2016...

Patient engagement in practice

Patient Involvement: “We have come a long way from the ‘Doctor knows best’ approach, but we’ve got a little bit further to go”

by Nicholas Brooke · February 2, 2016

As a medical doctor who’s come to the pharmaceutical industry, Dr. Paul Robinson has a first-hand perspective on what better patient involvement means. He shares his thoughts on what needs to be done and opens up about his personal...

The impact of patient engagement

Patient engagement brings dramatic changes to the healthcare system

by Nicholas Brooke · January 19, 2016

Dr. Lode Dewulf, VP and Chief Patient Affairs Officer at UCB, discusses the series of changes that need to happen in the healthcare system, linked to patient engagement. Dr. Dewulf argues that in the case of chronic diseases, patients...

The impact of patient engagement

Patient Engagement should be the norm

by Nicholas Brooke · December 18, 2015

“There seems to be a big commitment towards engaging patients but that work is still happening in a fragmented way, in different parts of the world”, says Nicola Bedlington, Secretary General at European Patients’ Forum. The...

Patient engagement in practice

VIDEO Interview: Why we need more human interaction in healthcare

by Nicholas Brooke · December 9, 2015

Healthcare is not just about medicine, but also about the way we live our lives. “Nobody wants to be defined by their disease”, says Marilyn Metcalf, Senior Director, Benefit Risk Evaluation at GlaxoSmithKline. “Each of us is a...

The impact of patient engagement

VIDEO Interview: Treatments should reflect values that are important to patients

by Nicholas Brooke · November 20, 2015

In the case of chronic diseases, often treatments focus on promoting length of life, longevity. In the video interview below, Marc Boutin, Chief Executive Officer at National Health Council, challenges this pattern and explains why it is...