We are moving into a new period of patient emancipation

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PFMD member Roslyn Schneider, Global Patients’ Affairs Lead at Pfizer discusses emerging trends in the development of meaningful patient engagement in a video filmed at the DIA 2016 conference:
“The most important trends I see emerging today are a stronger commitment to patient engagement and more collaboration. I see collaborations that go across companies, advocacy groups, regulators and academics.
Also, the questions are different now. The questions have moved from ‘Why should we be doing patient engagement?’ to ‘How should we be doing it?’.

Patient engagement is certainly impacting how care is delivered. Patients expect to learn about themselves and to be part of the decision making. They expect respect and transparency in clinical practice and clinical research and why shouldn’t they?
In the short term PFMD is adding great value by facilitating the sharing of patient engagement practices. Increasingly stakeholders across the medicine development landscape are signing up to share what they are doing in terms of patient engagement. PFMD has created a mapping and networking tool that enables that sharing and tracking. This means we can explore what is actually being done and create a standardised framework based on best practice.
In the long term, the great benefit of PFMD is that it is truly global. It has started in North America and Europe in practice and with the companies and the organisations that are involved this will become a global effort. This will happen, not just by translating what is being done in other regions but by building patient engagement best practices in each region together. This invaluable broad and unified approach is what PFMD offers.”
Watch the video to find out more [link to video on PFMD site here].
PFMD welcomes membership from institutions, organisations and enterprises that support a better future for patients. Join us and help shape the patient engagement landscape.