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Patient health data: translating stories into science

How can real-world data be captured and shared in ways that marry the needs of patients and researchers?   Patients’ lived experience is increasingly viewed as a valuable datapoint in understanding and addressing unmet health needs....
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How patients’ voices can change drug approval

Consulting patients early and often can help regulators understand how medicines users view risk, benefit and quality of life The case of Lotronex (alosteron), a medicine for the management of severe irritable bowel syndrome (IBS),...

Patient-focused medicines development: ‘From talk to action’

Author: Dr Lode Dewulf, Chief Patient Officer at Servier and a Member of the PFMD Board.  Workshop at DIA conference focuses on several initiatives making patient engagement happen Today, no pharmaceutical conference is complete without...

5 Minutes with…Begoña Nafría Escalera, Hospital Sant Joan de Déu

As part of our series to help the patient engagement community get to know one another, we spoke to Begoña Nafría Escalera, Patient Engagement in Research Coordinator, Hospital Sant Joan de Déu, Barcelona You recently presented the PFMD...

Integrating patient insights – challenges and opportunities

Interview with Anke Holtorf, Managing Director, Health Outcomes Strategies, GmbH on the subject of patient involvement in pharmaceutical market access.   Patients are playing an increasingly powerful part in market access, and this was...

5 minutes with… Karlin Schroeder from Parkinson’s Foundation

As part of a new series to help the patient engagement community get to know one another, we interviewed Karlin Schroeder, Senior Public Involvement Manager at Parkinson’s Foundation. What are the biggest challenges to widespread...

Are you and your projects on the map?

SYNaPsE, your tool for meaningful patient engagement, has achieved impressive exponential growth!  With 225 initiatives, 223 organisations and 870 users, SYNaPsE is becoming the go-to resource for all PE experts and enthusiasts. In...

Share4Rare advancing the agenda for rare disease patients

Share4Rare is a new platform that moves patients centre-stage and opens new opportunities for patient engagement. The online platform is currently in development in partnership with The Synergist – the organisation that host PFMD –...

New FDA guidance document

PFMD have taken time to respond to the recent Food and Drug Administration (FDA) open consultancy and subsequent update on its Benefit-Risk Assessment in Drug Regulatory Decision-Making. We believe the document offers clarity, is...

New members joining the PFMD partnership

Our community continues to grow. This year already we have welcomed Sheffield Biomedical Research Centre and Sant Joan de Déu Research Foundation (FSJD) into the PFMD family. Our rapid expansion is evidence of the growing momentum behind...