Recent Stories

Patient health data: translating stories into science

How can real-world data be captured and shared in ways that marry the needs of patients and researchers?   Patients’ lived experience is increasingly viewed as a valuable datapoint in understanding and addressing unmet health needs....
Read more
Filter by:
Sort by

More Stories

Doctors are paid for their expertise, what about patients?

Patients are increasingly seen as playing a valuable role in setting research priorities, designing clinical trials and informing market access decisions. But sometimes they are the only people in the room expected to give their time...

How the National Kidney Foundation is piloting the PEQG

The National Kidney Foundation is the leading organisation in the US dedicated to the awareness, prevention and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions of patients and their families, and...

Fair Market Value: Survey reveals new insights on patient compensation 

What does a fair approach to compensating patients for contributing to medicines research and development look like? We asked health stakeholders.  There is broad agreement that patients and patient advocates should be compensated for the...

Putting patient engagement on the map at ISPOR US

Dr Oleksandr Gorbenko displayed a PFMD poster at the New Orleans conference, attracting strong interest from experts in health economics and outcomes Patients are increasingly involved in clinical research as companies and academics seek...

Making the case for patient engagement

Danielle Barron speaks to MediPace founder Guy Yeoman about his latest efforts to spread the word on patient engagement.  When it comes to patient engagement, empowerment is the name of the game. That’s according to Guy Yeoman, founder...

EU must prioritise patient engagement in health research 

The European Commission, health industry organisations, and patient groups are busily crafting a bold new public-private partnership. Citizen and patient involvement will be a key focus. With plenty of existing tools to help make patient...

How Parkinson’s UK is piloting the Patient Engagement Quality Guidance

Parkinson’s UK is the UK’s leading charity supporting people affected by Parkinson’s, a neurological condition for which there is currently no cure. The charity’s mission is to find a cure and improve life for everyone affected by...