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Patient health data: translating stories into science

How can real-world data be captured and shared in ways that marry the needs of patients and researchers?   Patients’ lived experience is increasingly viewed as a valuable datapoint in understanding and addressing unmet health needs....
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Acknowledging the value of patient input

When it comes to ascribing value to patient involvement in the development of innovative medicines and med-tech, different stakeholders may have different perspectives. That was the finding of an interesting new report commissioned by...

5 minutes with… the American Migraine Foundation

As part of our series to help the patient engagement community get to know one another, we spoke to Nim Lalvani, Executive Director of the American Migraine Foundation, about advocacy and involving patients in scientific advisory...

These projects are laying the basis of a healthcare environment

With 34 years of professional experience, 18 of which are in the medicines industry, Daniel De Schryver has also been involved in aspects of patient engagement for more than 14 years. As Patient Engagement & Advocacy Lead, EMEA at The...

The first step is often the most significant

Dr Paula Wray, senior public involvement manager at NIHR INVOLVE in the UK has spent nine years in public involvement in applied health research. She attends around 25 patient engagement meetings every year and thus is more than up to...

A wonderful reference tool

Mary Alice Dwyer PharmD, is a Principal/Consultant at Medical Innovation and Insights who has spent 28 years in the medicines industry, including four of those involved in all aspects of patient engagement across the medicines development...

Refreshing to see so many great examples

As a Patient Leader, Consultant and Researcher, Simon Stones attends on average 50 patient engagement events each year. Unsurprisingly, his seven years of experience in the field was invaluable when it came to evaluating patient engagement...

Patient engagement is a journey

Dr Katherine Deane, BSc PhD, is a Senior Lecturer in Research in the School of Health Sciences at the University of East Anglia,...

A valuable resource

Thierry Escudier is Head of Clinical Development at Pierre Fabre Medicament. He has over 30 years in the pharmaceutical industry and is an expert in clinical development. In recent years he has gotten involved in patient engagement, and he...

Unlocking the potential of cohort studies

Research studies following groups of individuals can answer vital medical questions, such as why people suffer from a health problem; or what determines recovery. They are, however, expensive and cannot always be applied broadly. Synchros,...

A PE trailblazer committed to improving patients’ lives

In a fragmented and fast-evolving patient engagement landscape, the need to align stakeholders, harmonise approaches and perspectives and share best practices is critical as we strive to deliver better patient outcomes and drug development...

Developing the patient engagement system

Nicholas Brooke, CEO of PFMD, tells Gary Finnegan why solving the patient compensation conundrum will unlock the power of patient engagement Patients, industry and regulators are making patient engagement (PE) the norm in medicines...