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The impact of patient engagement

Patient health data: translating stories into science

by Gary Finnegan · April 25, 2022
How can real-world data be captured and shared in ways that marry the needs of patients and researchers?   Patients’ lived experience is increasingly viewed as a valuable datapoint in understanding and addressing unmet health needs....
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Patient engagement in practice

EU researchers to have access to ‘pool’ of patient experts

by Gary Finnegan · June 3, 2019
The value of including patients in medical research is now widely accepted. Yet one of the challenges for scientists and companies keen to embrace the concept of patient engagement is identifying suitably-qualified patient experts to work...
Patient engagement in practice

FDA calls on industry to speed up trials process

by Nicholas Brooke · April 29, 2019
The FDA appears to be taking its regulatory role to new levels as it seeks to shape a better medicines development ecosystem. The recent statement by FDA Commissioner Dr Scott Gottlieb focused on new strategies to modernise clinical trials...
PFMD partners & projects

Framework Development

by Danielle Barron · March 29, 2019
From the beginning, PFMD worked to develop a systematic approach that ensures co-creation based on existing knowledge and balanced collaboration with all relevant stakeholders. This allows us to move away from isolated and fragmented...
Patient engagement in practice

Reduce the burden of legal agreements with WECAN and MPE

by Danielle Barron · March 29, 2019
Collaboration between pharmaceutical companies and patient advocates typically requires both parties to sign contracts covering various topics. These written agreements can often be too long and complex, and can be ambiguous in nature....
Patient engagement in practice

Putting a figure on patient engagement

by Danielle Barron · March 29, 2019
As part of the Fair Market Value global effort, we launched a survey in mid-December 2018. This was open to all types of stakeholders, and the goal was to better understand their views and expectations on the topic. We have received more...
The impact of patient engagement

Synapse – your tool for patient engagement

by Danielle Barron · March 29, 2019
Synapse has evolved in the last year, from mapping to connecting the patient engagement ecosystem. The platform has grown 18% in initiatives and 30% in organisations since 2017, further adding to the diversity of the tool. This kind of...
PFMD partners & projects

Different patients, different solutions: PFMD at the EFGCP Annual Meeting

by Danielle Barron · March 18, 2019
Danielle Barron speaks to PFMD co-founder Tony Hoos about his recent participation at the EFGCP Annual Conference in Brussels What is an acceptable level of uncertainty? What is an acceptable benefit/risk ratio? These questions and many...
Patient engagement in practice

The wide-ranging impact of patient access

by Danielle Barron · February 27, 2019
Patient engagement means opening the door to patients for meaningful dialogue and contributions. A recent op ed in In Vivo explored several ways in which patient access can truly permeate the entire patient journey, especially in relation...
The impact of patient engagement

Europe highlights patient role in innovative medicines

by Gary Finnegan · February 12, 2019
The EU Innovative Medicines Initiative (IMI) is encouraging patients and patient groups to play their part in developing therapies of the future. With a budget of €3.3 billion (2014-2020), the IMI is the world’s largest public-private...