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The impact of patient engagement

Patient health data: translating stories into science

by Gary Finnegan · April 25, 2022
How can real-world data be captured and shared in ways that marry the needs of patients and researchers?   Patients’ lived experience is increasingly viewed as a valuable datapoint in understanding and addressing unmet health needs....
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Patient engagement in practice

Patients want to be part of the drug development process

by Roxana Radu · June 12, 2017
PFMD member Laure Delbecque, Associate Director, Clinical Outcomes Assessment ＆ Patient Reported Outcomes, Pharmerit International shares her views on how patient attitudes towards medicines development are changing: Patients today have...
PFMD partners & projects

Patients are our biggest supporters – and our biggest challengers

by Roxana Radu · June 5, 2017
Author: Claire Nolan, Research Involvement Manager, Parkinson’s UK What happens when you ask 39,000 members what they think of you? In the case of Parkinson’s UK we did this around 7 years ago and it transformed our organisation –...
Tools for patient engagement

Where we’ll be next month – DIA participation

by Nicholas Brooke · May 18, 2017
Going to DIA 2017 (June 18-22 in Chicago, Illinois)? Why not join PFMD members Marc Boutin (NHC) and Roslyn Schneider (Pfizer) on Tuesday 20 June. Marc will be chairing the forum “Walking the walk in patient focused medicines...
Tools for patient engagement

SYNaPsE – Your patient engagement hub just got better

by Nicholas Brooke · May 18, 2017
SYNaPsE – PFMD’s Global Mapping and Networking Tool aims to SYNergise Patient Engagement. It’s a dynamic user-populated platform that categorizes and ‘maps’ patient engagement initiatives and frameworks, and organisations...
Tools for patient engagement

Stakeholder Matrix Survey Updates

by Nicholas Brooke · May 17, 2017
Delivering meaningful patient engagement in medicines development and lifecycle requires all stakeholders to have a common purpose and vision and also clear understanding of expectations. That’s why we have carried out the Stakeholder...
The impact of patient engagement

Co-creation through collaboration – PFMD task forces

by Nicholas Brooke · May 17, 2017
Co-creating a meta-framework for patient engagement takes collective effort and commitment. We have now held 5 workshops with 62 international participants representing patients/ patient organisations, industry (including CRO and biotech),...
Patient engagement in practice

Welcome to our new Members!

by Nicholas Brooke · May 17, 2017
PFMD is delighted to welcome to its growing membership two new organisations who are very active in the PE community – INVOLVE and DIA. For over two decades, the national advisory group INVOLVE has been spearheading the drive to...
Patient engagement in practice

Patient centricity – a collaborative definition

by Roxana Radu · April 20, 2017
Author: Guy Yeoman, VP Patient Centricity, Global Medical Affairs, AstraZeneca.  More than ever before we are told to strive to be more patient centric in the way we develop our medicines of the future. But what does this actually mean?...
Tools for patient engagement

Publications Alert

by Roxana Radu · April 18, 2017
‘Improving Patient Involvement in Medicines Research and Development: A Practical Roadmap’ has just been published in Therapeutic Innovation & Regulatory Science. Authored by PFMD’s Jan Geissler and co-authors Bettina Ryll, Mary...
PFMD partners & projects

PFMD at first ever European Patient as Partners Conference

by Roxana Radu · April 4, 2017
PFMD was present at the first ever Patients as Partners (PaP) event to be held in Europe (5-6 February, London). Nicholas Brooke, PFMD CEO and Jan Geissler, Director at EUPATI, talked about the fragmented patient engagement landscape, the...