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Patient remuneration: have your say

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Now is your chance to help to share harmonised global principles on remunerating patients for interactions with industry  As patients and industry move towards new standards on how the patient community collaborates with healthcare...
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Wanted: a global approach to patient remuneration

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Patients should be compensated for their contributions to public engagement activities. A new project aims to co-create global tools to enable ethical, transparent, fair interactions between the patient community and pharmaceutical...
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The Patient Engagement Open Forum 2020

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The third and by far the “biggest” Patient Engagement Open Forum to date kicked off on June  25th with over a 1,000 registered attendees across the whole program. This year, the Open Forum stretches over 8 virtual events and 18...

The final piece of the puzzle: capacity building in patient engagement

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Pharmacist Anne-Lise Ducournau Lichtenberg explains what the PFMD How-To module on Capacity Building is and why it is essential that every actor in the patient engagement ecosystem can access relevant and up-to-date educational content to...

Protecting everyone’s interests: the RAPP project

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The result of a truly collaborative project, a series of reasonable legal agreement templates, offers protection for both patients and pharmaceutical companies, explains Federica Castiglione of Novartis Achieving meaningful patient...

Involving patients in drug development – from the start

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Patient engagement in preclinical research is a new phenomenon. Dr David Feldman, National Kidney Foundation, says a forthcoming PFMD How-To Guide will help connect researchers and patients in the earliest stages of medicines...

Training can help to build capacity for patient engagement

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Prof Benedikt Van Nieuwenhove, Managing Director of ECCRT, discusses the forthcoming PFMD ‘How-To Module for Capacity Building’ and how the COVID-19 pandemic is shifting attitudes to online...

How-To Modules for Patient Engagement 2020

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Author: Chi Pakarinen, Project Manager at The Synergist The co-creation Working Groups have been busy devising the various “How-To” guides, each focused on different activities and stages of the medicines development lifecycle. Check...