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The impact of patient engagement

Patient health data: translating stories into science

by Gary Finnegan · April 25, 2022
How can real-world data be captured and shared in ways that marry the needs of patients and researchers?   Patients’ lived experience is increasingly viewed as a valuable datapoint in understanding and addressing unmet health needs....
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Patients are not just stakeholders – they are experts

by Roxana Radu · December 10, 2016
Theresa Mullin, Director of Strategic Programmes for the U.S. Food and Drug Administration (FDA) Centre for Drugs shares her views about the importance of recognising patients and caregivers as experts in a video filmed at the DIA 2016...
Tools for patient engagement

Join the upgraded #PE mapping and networking tool

by Roxana Radu · November 14, 2016
Better patient engagement in medicine development begins with understanding and categorizing the existing landscape. PFMD has developed and launched an online mapping and networking platform that captures, maps and categorizes patient...
Patient engagement in practice

Next steps in developing a patient engagement Framework

by Roxana Radu · November 14, 2016
The complexity of medicines development and urgency to deliver effective patient engagement necessitates a phased working approach to the development of a meta-­framework for patient engagement- PFMD’ end goal. PFMD is taking a rational...
Patient engagement in practice

We need to connect the dots in patient engagement

by Ifeanyi Sargeant · November 4, 2016
Nicholas Brooke, Chief Executive of Patient Focused Medicines Development, explains what the global patient engagement mapping and networking tool launched this month means for patients and other health stakeholders. We hear a lot about...
Tools for patient engagement

Exploring best practice for patient engagement in HTA

by Ifeanyi Sargeant · July 18, 2016
The UK’s National Institute for Health and Care Excellence (NICE) is undertaking an exploratory study on how patient preferences could be captured and included in Health Technology Assessments (HTA). Funded by a £120,000 health services...
The impact of patient engagement

New working group established to exchange best practices

by Nicholas Brooke · July 14, 2016
The European Medicines Agency (EMA) and the United States Food and Drug Administration (FDA) have set up a new ‘cluster’ on patient engagement to share experiences and best practices on the way they involve patients and patient...
Patient engagement in practice

Health coalition pursues a unique and global approach to patient engagement

by Nicholas Brooke · June 10, 2016
A multinational coalition of stakeholders from across the medicines research and development pathway is addressing the need for a systematic and global approach to patient engagement. Members of Patient Focused Medicine Development (PFMD)...